Health Organization for Pudendal Education

Someone in the FB group is going to Fashokun at Johns Hopkins next week. I can let you know how it goes.
C

Kathy, Are you feeling any better this week, emotionally or physically? Are you on our FB are " pudendal neuralgia hope"? Its a closed group, so private, and you can " chat" with each other in real time. It helps greatly when you feel in " crisis mode". We are all suppo...

www.aetna.com/cpb/medical/.../0805.htm...
Policy. Aetna considers pudendal nerve decompression experimental and investigational for the treatment of following ...

I saw this a few months ago. The website is their stance on on surgery and blocks. That's why they aren't paying.
C

Approved on first try. My potter MRI was helpful to have, where she clearly states "entrapment". I used a lawyer.
Cm

Barb, No, I'm not considering surgery at this point. I just personally do t feel comfortable with the outcomes I have witnessed over the past 3 yrs. I love that Aszmann didn't have to sever the ligaments, genius! I did try prfa another time. I was pain free again 4 weeks later, felt so good I got ou...

A few ladies from our Facebook hope site went to turkey last year. Their results are rather vague. None if them talk much about it, but are still experiencing pain.
C

Kathy'd,
Did your insurance make you trial a stim before the pain pump?
Also, what kind if pain levels are you living in?
A neurologist here is beginning a research study dripping CBD into the intrathecal space.

(A component of MJ that's not psychoactive). Will be interesting to hear results.

C

I had visible swelling in sacral area on my affected side just lateral. Everyone blew it off. I still wonder what that was about.

C

Desperate, Dr. Nel Gerig in Denver is a urologist that loves to care for male PN patients. She really didn't help me much, but she is training with Hibner to learn the tg. I go once a year for documentation, ssd paperwork etcetera. She believes the MRN she orders in Denver is as good as Potters, but...

Barb,
You have an interesting case. So dr. Aszmann did your tg...do you think you may still have scar tissue distally at dorsal nerve? Also, did he NOT have to sever the SSL or STL? Just notched it? That would be a great advancement in the surgical technique.
Thanks,
Cm