Search found 116 matches

by Grammy
Tue Mar 30, 2021 10:02 pm
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Severe fatigue
Replies: 8
Views: 4736

Re: Severe fatigue

I am still alive and struggling with the fatigue and pne. I was devastated that the drg did not work for me but my wires were at a different place L1 and S2. Kits were lower. I am still fighting and hoping to trial a sacral stim on the S level. My biggest issue is feeling pressure and a foreign body...
by Grammy
Sun Mar 28, 2021 1:34 am
Forum: NEUROSTIMULATION
Topic: Pcoclsim by Abbott
Replies: 0
Views: 9110

Pcoclsim by Abbott

Has anyone heard of the new stim by Abbott called the Proclaim...Burst. Apparently this can be used in two ways if I am correct. It can be used at an extremely low setting as well as on a higher setting, for me personally, the only thing that helped was a stim placed on S 2, 3, & 4. In a couple ...
by Grammy
Thu Mar 25, 2021 1:23 am
Forum: NEUROSTIMULATION
Topic: Antje Barreveld Newton Wellesley Pain Clinic?
Replies: 1
Views: 1277

Re: Antje Barreveld Newton Wellesley Pain Clinic?

I have not been on the site for some time. To answer the question about my symptoms.....I have an extremely unusual case. When I had my second child in 1972, I kept telling the dr that I knew I was full term but he let me go two extra weeks before inducing labor. I had a forcip delivery and because ...
by Grammy
Sun Feb 23, 2020 7:08 pm
Forum: MEDICAL ADVANCES & EDUCATION
Topic: DRG STIMULATION/second visit
Replies: 6
Views: 2914

Re: DRG STIMULATION/second visit

Like yourself one of the things that always increases my pain is a bowel movement. Maybe it is the contraction of the intestines or the stool moving through the area but I am in the same situation as you are. I had a drg stim trial last year at this time. The position of the leads was L1 and S2. The...
by Grammy
Sun Dec 29, 2019 6:15 pm
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Best Medications for Nerve Pain/Sensitive Nervous System
Replies: 3
Views: 2155

Re: Best Medications for Nerve Pain/Sensitive Nervous System

I have take Effexor xr for many years. I have tried twice in the past two years to get off this medicine and I had the most horrid experience both times. First time I transition to Zoloft and I was extremely fatigued ...just recently I tried to use Prozac which stays in your system for days to get o...
by Grammy
Fri May 17, 2019 7:38 am
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Sotalol...betapace
Replies: 0
Views: 735

Sotalol...betapace

Has anyone felt an increase in symptoms using this afib drug? To me, and I have just started, I feel more vaginal burning than before when I took toporol xl. Under side effects it does mention some issues but not very informative. If you feel any negative effect on your pne symptoms, please post.
by Grammy
Wed May 01, 2019 5:36 pm
Forum: NEUROSTIMULATION
Topic: Drg failure
Replies: 6
Views: 3253

Re: Drg failure

Is interstim the same device as a sacral nerve stimulator. I would love to try the drg again at s 2 & 3. That is where Kits were placed. Another lady had the implant at L 2 & 3 but Is having issues with it not covering rectal issues. Anyone know of a great Dr who does sns stim in NH or Mass?
by Grammy
Sun Apr 28, 2019 2:56 pm
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Fatigue
Replies: 1
Views: 1405

Fatigue

Sorry I did not know where to put this...does anyone suffer from extreme fatigue. Next to the pain, this is huge for me. If this is you as well, how do you cope? Provigil and Effexor xr are not doing the job. Thinking of seeing a naturopathic Dr as they often look at other things like cortisol, dhea...
by Grammy
Sun Apr 28, 2019 2:47 pm
Forum: NEUROSTIMULATION
Topic: Drg failure
Replies: 6
Views: 3253

Drg failure

My drg trail at the Newton Wellesley Clinic was brutal. No sedation other than a Valium tablet. Horrific ordeal. One lead slipped out of place so I was left with one at L 1 and two at S 2. It did help the burning sensation but did nothing for the feeling of foreign object and pressure. I was devasta...
by Grammy
Sun Apr 28, 2019 2:39 pm
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Kratrom
Replies: 0
Views: 468

Kratrom

Has anyone heard of this...if so what strain do you buy and how much do you take? Also does anyone know if like opioids, does it cause respiratory depression.

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