Health Organization for Pudendal Education

So sorry for all your little guy has had to endure .
As I read your initial post the issues that arose after survey are what stood out to me . Have they checked for or considered nerve damage as a result of anesthesia? Just curios .

Thinking about your family.

Hello there , It has been a while . Violet , to answer your question I think mag has helped mostly bc it has relaxed the muscles and kept her BMs regular. We have had 3 1/2 years of normalcy. Through clean eating supplements. We got lax on foods and after having the flu in December began to have sev...

Happy New Year! We are praying for all who are walking this journey. May you find hope and paths that lead to health . We walked this hard road for 7 miserable years . Learning that we were exposed to neurological irritants . ( aspartame, etc) we found MUCH help in healing when we began Magnesium. C...

Violet , We learned of allergies through process of elimination. We had a nutritionist come and help us with foods . The Aspertame was immediate. We now keep activated charcoal on hand for accidental ingestion . We use citrate blend magnesium 1000mg a day . We are starting track and doing gymnastics...

Good day , Wow it has been a long time since I have posted . We are doing amazing considering ! Here's what we have found . Magnesium has been a God send ! It has helped with tightness of muscles which in turn relieves pressure on nerve . Also we have discovered she is HIGHLY allergic to aspartame !...

Good day everyone , We are still on the journey like you all. Symptoms are still calmer ( not gone ) I am definitely finding food triggers inflammation Which in turn erupts symptoms. We are still trying to figure things out specific to her Process. It is so frustrating at times .... My heart goes ou...

8/18/2014 All of our genetics testing came back normal. So still no definite answers We have been trying different things and have stumbled upon some interesting things Although celiac testing was neg. we had an opportunity to have a wonderful woman stay with us to help me with eliminating GLUTEN .....

Hey there. I would agree you need to see a neurologist.
Do some research into these two things and take the info to your dr.
Myasthenia Gravis and Mitochondrial Myopathy .
These are Mia diagnosed a lot! This could be your contributing factor
Good luck with your quest
Mom

NEURO APPT 1-28-2014 We had an appt earlier this week with amazing new neurologist . He is running some tests and I am hopeful that we are moving in the right direction . I have stated for a long time that the " root" of her PN symptoms is muscular . We have increased muscular issues in t...

We are still pressing ahead. We are thinking of switching dr's She has had a growth spurt recently which has caused symptoms to be at an all time high. That convinces me more it muscular for her. She was up and down stairs recently ( we don't have stairs in our home) and she could not walk without d...