Health Organization for Pudendal Education

I will say this. Dr. Prager is over 90% sure that an intrathecal pain pump will take away the PGAD sensations. There's a trial for this. So you would know first if it would work for you. I haven't had the trial done yet. If you don't care about a big tuna can shaped device sticking out of your abdom...

It's been a LONG time since I wrote on here and I apologize in advance for this being so lengthy. I have had PGAD for over 14 months now and everyday I suffer. Everyday I cry. I have a 1 year old and 5 year old. It is SO hard. I have never been in the moment with them. It takes all I have to get thr...

OH My God I Am dying here! It's been almost a year with PGAD and I"ve done everything under the sun except a vestibulectomy which has been proposed by Dr. Goldstein in San Diego. Still holding off on that idea but shit I don't know what else to do. This has LITERALLY WITHOUT EXAGERATION taken a...

Hey everyone. Haven't been on here in a few weeks or so due to the holidays and dealings with the kids ,etc. I am still on the search for help with this PGAD. I have tried so many things. Since the post I had on page 27 or 28 with all the meds I tried for this I have also tried...Bupenorphine (Butra...

I have this along with many other symptoms. Does pelvic floor Botox help or would piriformis Botox help. My pelvic floor is strong and tight, physio not helped, my piriformis is spasming everyday, PGAD constantly need to urninate, I want to try Botox anyone had it? Does it help, have you had it in ...

Lucy, People do NOT understand how awful and life-altering this condition is...when I told my primary MD about my PGAD, she actually had the gall to say,"I bet some people would like to have this." You can't understand unless you live it. Violet is right, we have to keep trying everything...

Violet, I sent you a PM answering everything. Would love to talk to you and know your story. Thanks

Hi Lucy, Looks like my other post did not go through. My first thought after reading your overwhelming post, was how you were robbed of being a new Mom. Can't even imagine having to deal with PGAD and parent a newborn and young children. The one med I don't see on your list is Xaxan (or another Ben...

Laurina...where do you live? what dr did you see? I would love to see your doctor somehow. Or at least talk with her.

Hi everyone. I actually joined this forum a few months ago but never posted anything. I am so depressed over having PGAD. I got it 6 months ago from a doctor in Orange County, California who was doing a trigger point injection on me to help with the bladder frequency I had been suffering from for 2 ...