Health Organization for Pudendal Education

I am meeting with my surgeon on January 2 to talk about and schedule a spinal cord stimulator trial. I was told by office staff it takes about 3 weeks to get on the calendar. My pain management doctor told me I had to reduce my short acting pain medication from oxy10 to 5. I have been at 10 for over...

No luck yet. I am sure they r in no hurry. I did however get a letter from disability and they approved my permanent disability application in relation to my student loan. I am so glad ! So now I do not have to make any student loan payments I am going broke as it is with all my medical bills.

Hi, my name is Marianne and I have had Pudendal Neuralgia for 5 years. It took me 3 years to get diagnosed. Then I went thru all the steps of treatment with no relief. Had transgluteal decompression by Dr. Conway July of 2016. That did prove I was entrapped but afterwards it just made me worse. In J...

Hi my name is Marianne I have had PN for 5 years . I was entrapped and had decompression surgery in shyly of 2017. Unfortunately it made me worse. I have tried more nerve blocks and two of the amniotic allograft injections but nothing’s seems to help. I think I worked myself to hard into the pain be...

Hello, My name is Marianne I have had PN for 6 years. I have tried everything meds, lifestyle change, PT, blocks and dry needling, Botox . I was entrapped had the decompression surgery and got freed. That was July 2017,unfortunately it made me worse. I tried more blocks then 2 amniotic allografts. N...

I would like to say how grateful I am for the support of this site. I have had PN for three years and after all conservative tx failed I had surgery. I am now one week post op excision of part of my sacrotuberous that had my nerve trapped and all of my Sacrospinouse ligament. I am curiouse how long ...

Update: yes the numbness went away and I can now urinate and defecate: I still have to push to get all the urine out. I have tried 2 pelvic floor PT's in the past. Doctor Furr talked with last PT Who suggested a Botox injection to the pelvic floor muscles during the same visit as another Pedundal bl...

Hi I am new here. I was diagnosed with PN a few weeks ago after I got a whole day pain free after my nerve block. My gyno says since the pain started sfter repetitive ladder climbing and not surgery that my nerve is not entrapped just inflamed and that repetitive blocks will fix it . The second bloc...

Hi, my name is Marianne. Just want to say how blessed I already feel to have discovered this site. My pain started 21/2 years ago after many hours going up/down a ladder followed by a long car trip. Pain left buttock in sitting severe, extended walking also bad. Have been to 7 doctors. Second PT tho...