Health Organization for Pudendal Education

Thank you, Violet. I have a niece that does weight lifting and I'm constantly warning her to stop if she feels any pain. My mother and my sister have also had pain issues but they weren't pudendal. I read that too about the bone structure of the pelvis causing PN.

I've been out of the loop for some time now. Back when I was researching 10 years ago, pudendal neuropathy was not thought to be hereditary. Now I'm seeing some postings on different websites that doctors are telling patients that it could be hereditary. Recently through Facebook I found my biologic...

It does help with breakthrough pain but unfortunately I'm getting rashes sometimes from using it and then other times I don't. I still need to have allergy testing to see if it's something else.

I also use Ketamine, but in a compound cream. The cream is made with the following drugs:
KETAMINE 5%       
LIDOCAINE 5%        
DIAZEPAM 1%        
GABAPENTIN 6%

The nerve decompression surgery? I had one surgery with two ligaments removed on each side which freed up the nerve in both places.

That's a good suggestion. It would explain why so many people have PN much worse than others.
I will tell you that weight gain definitely makes the nerve damage worse. I know this from experience! It's all about the gravity...

Erica,
Is the "neuro-modulation therapy with a Scrambler device" similar to a spinal cord stimulator? My doctor is always open for suggestions and treatments. I keep a running list for when I go see him.

I know this is not a hard cushion but it is really help me. I use a Boppy Pillow. I buy the more expensive one since it has more filling and much thicker. I use it with the opening to the back. It's very adjustable since it's a pillow. I use it to drive and sometimes even to sit to eat for short per...

She lives in Cleveland Ohio. Sounds like she's getting the runaround from the doctors there because they don't think anything is wrong with. Clearly there is. May I suggest to her that she get on this forum and maybe get some advice from you? She's very desperate.

I'm posting this for Donna, who's on the Facebook page Pudendal Neuralgia Hope. She is extremely desperate and is not getting any help from her doctor. I watched her YouTube video and it's absolutely heartbreaking and unbelievably sad how she's being treated by her doctor. She has asked for everyone...