Health Organization for Pudendal Education

I have been through the ringer and know I have to do something but I'm not sure who the best choice would be at this point. Can anyone remark on what doctor they would recommend the most for this? I was going to see one doctor but realized he was not the right one to work on me.

Violet - are you saying an MRN cannot properly diagnose PNE? I know Dr. Hibner's office says they don't rely on them.

Melody, thanks for your thoughtfulness. Yes it is a long haul. I never thought ahead back when all this began, about where I would be in several years. But it has been long and unbearable at times. I seem to have hit a point of treading water and something of an acceptance and more of a calmness. I ...

So I've been dealing with PN for 10 years. While I was recovering everything fell by the wayside: employment, dental care, family. I'm trying to swim to the shore from being in deep water and huge waves of pain and life troubles keep knocking me back out to sea. Anyone feel like giving up? Like God ...

April wrote:Hi, saint. Is that a blog?

April

Yes you can find it online.

Well, I certainly can see why you would make the choice for surgery and I wish you all the best with it. I hate to think where I would be if I hadn't tried surgery. BTW, it's my understanding that Dr. Dellon does surgery in Nevada too -- just fyi for those who are following this thread. Violet Viol...

What does it mean "how he cuts the STI"? I'm sorry I forgot - you had surgery with Hibner? I thought we could list which doctor had the best success rate. I've had bad doctors before and the best we can do is rate them to protect others from the same fate. But pudendal injury is so severe ...

I have been so traumatized by my pudendal nerve injury that I'm afraid of getting worse. I don't know where others are on the spectrum of this but I'm on the far far worse end. I get sick to my stomach just reading some of the posts and have to leave as I'm in pain already and reading things sickens...

There are a lot of truly suffering individuals. I urge all to read Pain News Network.

Okiegirl, I'm so sorry. This sounds really difficult. Before I started medications, I had the constant urge to urinate---maybe not as extreme as you describe it, but it was interfering with my life (I was waking up repeatedly through the night even when my pain was under control). I was initially g...