Health Organization for Pudendal Education

Thanks Violet for your response. I a bit nervous but just praying this help otherwise I'm going to feel very disaapointed/upset I think.

Best,
waterfall

I'll let you know how it goes.

Thanks, Emily

Hi - I'm pretty new to the forum. I just completed 6 weeks of Elmiron mix instillations. I also had a "test" pudendal nerve block with lidocaine in August that helped but for a very short time. I have really severe pelvic floor dysfunction as well as Interstitial Cystitis. Also had endo wh...

Well, time did go by and I have a lidocaine diagnostic pudendal nerve block tomorrow. My surgeon is going it under anesthesia mostly because I'll also be getting a cystoscopy and bladder stretching for my interstitial cystitis. It's one of those things where you no longer know what you want the outc...

It's true I have started thinking this pain level is permanent. I appreciate your reminder it's not.

Thanks, Violet.

Violet, Yes I have some narcotics and am using them sparingly. I did contact my family doctor know today that I'm still having a lot of trouble getting through this right now so hopefully they will work with me. I don't feel great about taking more meds but I don't know what else to do right now eit...

Patty:

Thanks for the reply. That is exactly what I am doing currently. I have a call into my urogyn to see if she can prescribe 2 daily so I can keep doing so if I need to.

Thanks,

Thanks so much for responding, Patty. I do have some narcotic pain meds here, along with the suppositories, and lidocaine gel. I think I'm just hitting that limit of pain despite . I don't know how to handle it. I know the blocks are only temporary, but I appreciate the reminder that I need to keep ...

I have 23 days until they do a diagnostic block in an OR. I don't know how I am going to make it that long. I can't walk very far at all before the burning across my sacral and other areas take over and I can't move on. I really am feeling completely desperate and don't know how to cope. I'm afraid ...

Hi Violet,

Thanks for your response.

I am on other SSRI/SNRI for depression so I can't add that, however I have tried it in the past without it working.

23 days till my diagnostic nerve block.. and counting.

I don't know how I'm going to make it. I can't walk without severe burning.