Health Organization for Pudendal Education

Maybe you could call Dr. O'Brien's office and see if they know of anyone in the UK who does NCS or EMG for pelvic pain?

Hi Mari,

Glad to hear the injections are helping. Sounds like pretty dramatic improvement and I hope it continues!

Violet

I can't blame you for being pessimistic. I was scared after surgery. It is not unusual for months 3 and 4 to be the worst part of recovery as the nerve is waking up. So please hang in there and don't give up hope completely. You've had this for 7 years so it's not going to go away quickly. I wasn't ...

You could potentially try a dorsal clitoral nerve block for diagnostic purposes if that is the only place you are having pain. It is one of the branches of the pudendal nerve.

Violet

If you have clothing that rubs in the wrong place it can cause friction when walking and increase your pain. Some people with PN have to wear really loose clothing, especially around the panty line. But I had pain when walking no matter what I was wearing so sometimes it's just the friction of the n...

Good idea to get a second opinion. I could be way off base, and I hope I am, but I am coming from the experience of having my gyn tell me not to have a pelvic floor repair because it could increase my PN pain if the pelvic floor was pulled too tightly. I'm not sure what the treatment would be but I'...

Pelvic floor PT aggravated my pain before PNE surgery too. I decided to stop doing it because I couldn't see the point in aggravating an already irritated nerve. It depends on the PT as to whether they will give you a diagnosis. Mine diagnosed me when the local doctors had no clue. She pressed on th...

SweetMama, If you have formed scar tissue after a hysterectomy, it could potentially cause entrapments on both sides. I'm not saying that's for sure what has happened but theoretically, it is possible. Or if the pelvic floor was pulled tight on both sides it could theoretically cause a stretch of th...

What surgical approach did you have done? Have you asked the surgeon the mechanism for how these symptoms could have gotten worse? I remember I had some reduced sensation after surgery - I guess you could call it numbness, but not as pronounced as what you are describing. It slowly improved over tim...

Some of the PT's have websites where you can contact them to find out what type of therapy they do, and some of them have emails that you could contact them to find out.

Violet