Search found 11 matches

by anne77
Mon Mar 26, 2018 9:46 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: New Pudendal Pain Treatment with the DRG Stimulator.
Replies: 12
Views: 3126

Re: New Pudendal Pain Treatment with the DRG Stimulator.

John, your post is the most encouraging one I've read in a very long time & I also live in Florida (Jacksonville), and I would like to pursue the doctors who have helped you. Can you please tell me the name of the doctor who did your DRG implant? You mentioned Dr. Ahmed and Dr. McRoberts. I am i...
by anne77
Mon Mar 26, 2018 7:41 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: New Pudendal Pain Treatment with the DRG Stimulator.
Replies: 12
Views: 3126

Re: New Pudendal Pain Treatment with the DRG Stimulator.

Good luck Marianne! I hope you get approval! I am going to look into this as well as I have tried EVERTTHING else for 3 years now.
by anne77
Mon Mar 26, 2018 3:48 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: I hope this info. helps People w/ Pudendal Nerve Entapment
Replies: 9
Views: 20792

Re: I hope this info. helps People w/ Pudendal Nerve Entapme

Gretel, I just posted about my unsuccessful allograft injection with Dr. J. It is so discouraging! I am going on 3 years now, and I just hope and pray that we can all be truly helped in the near future:)
God Bless, Anne
by anne77
Mon Mar 26, 2018 3:22 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: My experience with Dr. Jarnagin and the Amniotic/Botox
Replies: 30
Views: 5551

Re: My experience with Dr. Jarnagin and the Amniotic/Botox

Hope, I feel your pain and disappointment:( I only have PN, but the allograft effected me the same way. I am in total flare and have taken to my bed these last few days. It is so hard being hopeful, only to be let down again. I usually am researching the next thing to try, but for today, I just don'...
by anne77
Sat Mar 24, 2018 3:05 pm
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Cymbalta
Replies: 3
Views: 985

Re: Cymbalta

I tried switching from lexapro to cymbals as well, and I did not like it at all either!
by anne77
Sat Mar 24, 2018 2:54 pm
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Valium suppositories
Replies: 3
Views: 806

Re: Valium suppositories

I have used them on and off over the past few years. I have tried them both rectally and vaginally as recommended by my urogynecologist. They do help to relax the tight pelvic floor somewhat, but unfortunately, they make me drowsy and only give me minimal relief. I have also tried compounded supposi...
by anne77
Sat Mar 24, 2018 2:18 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: My experience with Dr. Jarnagin and the Amniotic/Botox
Replies: 30
Views: 5551

Re: My experience with Dr. Jarnagin and the Amniotic/Botox

I had an amniotic allograft with Dr. Jarnigan on Dec. 28, 2017. Your description of the procedure was exactly what I experienced as well. I traveled from Jacksonville, FL to Franklin, TN for the procedure and followed all of the post procedure instructions, but I am unfortunately not one of the luck...
by anne77
Sun Oct 29, 2017 10:38 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: Dr. Carrillo - Rochester, New York moving to Florida
Replies: 4
Views: 2721

Re: Dr. Carrillo - Rochester, New York moving to Florida

Thank you, I will post if I know anything:)
by anne77
Sun Oct 29, 2017 8:08 pm
Forum: BOTOX
Topic: First Botox Injection Friday
Replies: 10
Views: 7711

Re: First Botox Injection Friday

Did you have a good outcome with Dr. Hibner? He is at the top of my list if I feel that I need to pursue surgery?? Did the botox help--if so where was it injected? I had injections at the Cleveland Clinic in South Florida (in the anus) and it was not good!
by anne77
Sun Oct 29, 2017 7:15 pm
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: Pain is less after BM
Replies: 2
Views: 1255

Re: Pain is less after BM

I have pain if I am unable to have a BM or after I have A BM, so either is bad:(

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