Health Organization for Pudendal Education

Hi Stephanie and Joelle, Thanks a lot for your posts and support, Hi Stéphanie, The estrogen cream made your PGAD worse. It is an important information for me because my gynecologist wants me to go on Hormone replacement Therapy to stabilise my hormones because I started the menopause 6 months befor...

Dear Violet and all of you on the forum, Thank you for your posts and your support. Find below an update concerning the different diagnosis and appointments I got in France regarding my PGAD : My PGAD is still here and I only take zopiclone (to sleep) and xanax during the day to help me bear my PGAD...

Dear Violet and all of you on the forum, I met Dr Rioult las Tuesday ( Pudendal nerve pain specialist and anesthesiologist in the Centre Catherine De Sienne in Nantes ( West of France). For him PGAD is part of pudendal neuralgia and he thinks PGAD is triggered by the pudendal nerve. Some patient can...

Dear Violet, I had my dorso lumbar and Pelvis MRI done at the same time without contrat dye on Friday. The radiologist decided to do one MRI only. The dorso lumbar is normal, no cysts, no abnormal discs. The Pelvis MRI shows a compressed bladder because I have a very large fibroid in the uterus (I k...

Hi Violet, I went to a very good physiotherapist. She thinks my pelvic floor muscles are very tense and so are my lungs muscles. SHe told me my diaphragm is totally blocked and that's why my bladder and my lungs are so painfull. She knows she can help on pudendal neuralgia and painfull bladder but s...

Hi April and Violet, Thank you so much for your posts. I had a bad PGAD flare up (and very bad pain in my urethra) since I had my urodynamic test last thursday. My urologist told me I don't have an intertistial cysticis nor an overactive bladder. I don't have incontinence either. My bladder is ok. I...

Hi Passenger, Is your PGAD geting better ? Mine is getting worse, I suffer from a painful bladder and constant arousal. I have PGAD since I withdrew from Sertraline while being on it for only 2 weeks. I brought my dose down from 50mg to 25mg because I had a lot of side effect (tinnitus) then I devel...

Hi Violet, Thank you so for your message. I had been very bad lately suffering from a bad PGAD flare up (and my tinnitus is very loud) so I am suffering a lot. I tried lidocaine gel but it doesn't work and I am obliged to relieve my PGAD manually (can't be too graphic) otherwise I become very agitat...

Hi Sadie, Thanks a lot for your help and for answering my questions. i am very tired and depressed at the moment. I also have very bad tinitus since I withdrew from Sertraline (I was on it for only 2 weeks when I got bad side effects and it is during withdrawal that PGAD appeared alongside to Tinnit...

Hi Violet, Thank you so much for your support. I tried anafranil with my psychiatrist at the lowest dose but it made my tinnitus worse so I stopped it. My tinitus is a big probem because it spikes any time I am trying a drug. I saw there are 2 other tricyclics, laroxyl and nortryptiline. I wonder if...