Search found 30 matches

by puffsplus
Thu Dec 13, 2018 10:54 pm
Forum: OTHER THERAPIES
Topic: Flying across the US for PRF on Nov 13
Replies: 19
Views: 5252

Re: Flying across the US for PRF on Nov 13

Well, it didn't last. I had intercourse with my husband two days in a row about a week and a half after coming back. While I didn't have pain during sex, which was a change, my pain came back afterwards, almost back to baseline. I saw a local pain doctor here. I'm beginning the process of getting do...
by puffsplus
Tue Nov 27, 2018 2:33 am
Forum: WELCOME CENTER
Topic: Please help - CPPS/PNE male
Replies: 5
Views: 920

Re: Please help - CPPS/PNE male

1) Do you think this issue will fizzle off like it has before? I would stop running too hard, and definitely stop with the heavy lifting. Weightlifting is how the founder of this site developed her PN problems. I got pudendal neuralgia from cycling, so I've switched to swimming, which is exercise t...
by puffsplus
Sun Nov 25, 2018 10:47 pm
Forum: OTHER THERAPIES
Topic: PRF does it work/
Replies: 6
Views: 2366

Re: PRF does it work/

Violet M wrote:Yes, I had pain with intercourse although I think it was actually worse the day after due to burning pain.
Yes, the same for me. The worst is the day after.
by puffsplus
Sun Nov 25, 2018 10:45 pm
Forum: OTHER THERAPIES
Topic: Flying across the US for PRF on Nov 13
Replies: 19
Views: 5252

Re: Flying across the US for PRF on Nov 13

I understand Dr. Richard wanting a pelvic MRI and it is unfortunate your primary care doctor won’t write you a prescription for one. Will Dr. Attaman? Didn't ask for one. I only wanted the MRI so that I could get PRF from the local doctor, and that appeared to be a requirement. Although I don’t thi...
by puffsplus
Sun Nov 25, 2018 10:43 pm
Forum: OTHER THERAPIES
Topic: Flying across the US for PRF on Nov 13
Replies: 19
Views: 5252

Re: Flying across the US for PRF on Nov 13

How are you doing now? Do you still consider the treatment a success? And does Dr Attaman use steroids in his nerve blocks? Still short of two weeks. There's definitely an improvement, but not a complete remission, which is what I was hoping for. I've had a setback triggered by having intimate rela...
by puffsplus
Tue Nov 20, 2018 3:19 pm
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: What weightlifting can be done with pelvic pain?
Replies: 11
Views: 5915

Re: What weightlifting can be done with pelvic pain?

Violet M wrote:I use light weights but I won't ever risk using heavy weights again -- just because that's what caused PNE for me in the first place.
Violet,

Do you know which lifts or exercises contributed to the PN damage? Do you or your doctor know?
by puffsplus
Tue Nov 20, 2018 3:17 pm
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Anyone comfortable in their car?
Replies: 13
Views: 7051

Anyone comfortable in their car?

I find the worst irritation of my PN comes from sitting in traffic in my car. I have a TheraSeat in my driver's seat, but I'm not sure how much it really helps. Sometimes I drive with it, sometimes without. But regardless, sitting in traffic a long time really causes pain. Does anyone with PN have a...
by puffsplus
Mon Nov 19, 2018 11:58 pm
Forum: OTHER THERAPIES
Topic: Flying across the US for PRF on Nov 13
Replies: 19
Views: 5252

Re: Flying across the US for PRF on Nov 13

Glad the PRF has helped. I have seen Dr. Richard in Maryland, although I have not had any procedures with him. I know he is considered quite capable. I hope you have better luck getting time with him than I did. I live driving distance to him also, but despite talking to two of his office staff and...
by puffsplus
Mon Nov 19, 2018 11:51 pm
Forum: OTHER THERAPIES
Topic: Flying across the US for PRF on Nov 13
Replies: 19
Views: 5252

Re: Flying across the US for PRF on Nov 13

Was your Botox done under CT guidance and were you asleep or awake? Ultrasound, and I was awake for everything. Just local anesthesia with lidocaine. The treatments should be done separately so you know what helped according to my dr. That is the empirical and technically correct approach, but the ...
by puffsplus
Sun Nov 18, 2018 7:31 pm
Forum: OTHER THERAPIES
Topic: Flying across the US for PRF on Nov 13
Replies: 19
Views: 5252

Re: Flying across the US for PRF on Nov 13

April, I don't know! So the Dr. mentioned that it will be a couple weeks before full effects take hold. I will post an update at that time to let you all know how I'm doing. I asked him point blank, "How will I know how much is the Botox, and how much is the PRF?" He said, "As long as...

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