Search found 234 matches

by flyer28
Thu Mar 28, 2024 4:34 pm
Forum: WELCOME CENTER
Topic: New Member: Pudendal Nerve Damage - Desperate for Relief
Replies: 20
Views: 892

Re: New Member: Pudendal Nerve Damage - Desperate for Relief

I highly doubt that there is any direct damage to pudendal nerve imposed by that massage tool. It rather aggravated your anxiety related to all these pelvic pain. Surely pudendal nerve plays one of the main roles in this havoc but might be not sole culprit. Muscle spasms might be very painful and th...
by flyer28
Thu Mar 28, 2024 3:37 pm
Forum: WELCOME CENTER
Topic: My story: post-ejaculatory pain
Replies: 18
Views: 635

Re: My story: post-ejaculatory pain

Fabio I can relate to you. My pelvic pain started as s post-ejaculatory pain day after, and lasted several days. Later I had some better years, when I avoided the pain but the ejaculation was always risky (though not always connected with pain). Thus year I am struggling again, neuropathic burning, ...
by flyer28
Sun Mar 03, 2024 4:06 pm
Forum: SURGERY
Topic: Thoughts on my case
Replies: 3
Views: 275

Re: Thoughts on my case

Flare ups are always upredictable, this is most devastating aspect. I had two great weeks with minimal pain/aches but now neuropathic pain is back. I try to stay active, make my stretching routine every evening, add Amytriptilin and Klonopin to my regimen and battle anxiety. Every flare up is demoti...
by flyer28
Fri Feb 09, 2024 9:39 am
Forum: SURGERY
Topic: Thoughts on my case
Replies: 3
Views: 275

Re: Thoughts on my case

Feel a lot of empathy for you, mate. I am recently struggling with flare up after 2 almost assymptomatic years and it is a tough task. Regarding your problems with abdomen - I think more probably there are many trigger points in psoas and rectus abdominis muscles, they tend to be very stubborn and c...
by flyer28
Wed Jan 24, 2024 4:49 pm
Forum: WELCOME CENTER
Topic: Where do I start?
Replies: 27
Views: 1467

Re: Where do I start?

Hi Violet, I was at my PT last Friday, he stated that my muscles were contracted but the treatment was not as painful as I assumed to be. Still battling with flare-up, cca 3 weeks. It is tough especially in mental dimension, becuase I had long period without any pain (and no pills).
by flyer28
Sun Jan 21, 2024 10:44 am
Forum: WELCOME CENTER
Topic: Where do I start?
Replies: 27
Views: 1467

Re: Where do I start?

Thank you Violet for your kind words. I think there are 3 possible factors: -I havent been to PT more than half year -I had a Covid before Christmas, it was not serious but the infection left my body in completey disarray, muscle pains, fatigue etc. -I had my last major flare up exactly one year ago...
by flyer28
Sat Jan 20, 2024 9:24 pm
Forum: WELCOME CENTER
Topic: Where do I start?
Replies: 27
Views: 1467

Re: Where do I start?

It is slightly similar to my experience (differerence is that I am struggling with right side). Right now I am struggling with nasty flare up again, cca 3 weeks. pain in right shaft (at base of penis), groin, ischiocavernous, bulbospongiosus, scrotum. Burning, stinging, neuropathic pain. I was horri...
by flyer28
Thu Aug 19, 2021 1:20 pm
Forum: WELCOME CENTER
Topic: looking for feedback
Replies: 6
Views: 8241

Re: looking for feedback

It is highly improbable. High anxiety is mastering your mind right now, I know this feeling very well, very difficult to cope. I also had days when I was almost decided to go for operation at all cost and then came period of several months, when my pain diminished to barely percievable discomfort, I...
by flyer28
Thu Aug 19, 2021 9:54 am
Forum: WELCOME CENTER
Topic: looking for feedback
Replies: 6
Views: 8241

Re: looking for feedback

Here are few of my thought regarding your relaps: -I assume that in 99% probability you dont have PNE but pelvic floor disfunction where pudendal nerve plays significant role (dont forget other pelvic nerves) -to skip PT for 8-9 months was a mistake (exactly the same I made because of covid restrict...
by flyer28
Wed Aug 18, 2021 8:24 pm
Forum: WELCOME CENTER
Topic: looking for feedback
Replies: 6
Views: 8241

Re: looking for feedback

Alessandro, I remember we exchanged some ideas exactly one year ago (having similar issues) and unfortunately after 10 almost assymptomatic months I also have a flare up. More to come later.

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