Health Organization for Pudendal Education

Has anyone heard of "scrambler" therapy? I just learned about it yesterday. A physician , Dr. Stephen D'Amato, in R.I. went to Italy to study this therapy that works to scramble pain messages the brain receives. It is used to treat neuropathy from chemo for cancer but he has used it for a variety of other neuralgias such as pudendal neuralgia. If you type in scrambler therapy in Google you will see links to his web page. The good news is that it is non invasive and the machine looks like an ekg machine and attaches to your body in a similar way and 10-14 treatments should give long lasting pain relief. The bad news is that it is not covered by insurance and very few centers in the country (10) are offering this therapy. I am looking into being part of a clinical trial. I may not qualify and will keep you posted.
Nebbias01

I looked into this over a year ago being one state over. The doc gets back to you quickly via email but it just seems like hocus pocus to me. But that's just me. I also think reiki is a bunch nonsense

Patty I appreciate your response to my post.
I also wonder if it is not a real treatment. Johns Hopkins in Baltimore is doing clinical trials with cancer patients. Some will get the real thing " calma rx" therapy and some will get "sham therapy". It will be interesting to see if it isn't all a sham. If it works and insurance will cover it I will be first on line.
I am on narcotics for severe anal pain diagnosed as pudendal neuropathy. I have had it for 3+ years and another non pudendal chronic neuropathy for 15+ years.I have tried everything except surgery. I have not heard of good surgical results for my pudendal pain because both sensory and motor nerves are affected and I do not want to wear diapers.
Other clinics around the country including the Mayo clinic in MN and one in NJ are also using this scrambler therapy.
How are you doing? I am a a 68 year old grandmother.
nebbias 01

I'm in year #2. My rectally pain will just not go away. I have tried everything. I refuse to get a pudendal block and or Botox. If it isn't long lasting I just don't see the point. This has been life changing and not in a good way.

This therapy is not new but its familiarity increases since last two years. It is not painful treatment. It is by means of disposable surface electrodes applied to the skin area corresponding to the pain areas involved. This treatment consists of 10-12 treatment sessions which can go for more than 2 weeks period. This consists of set up phase which go for 40-45 minutes. If the condition are complex it may require additional treatment session.

If you are suffering from any nerve pain since long and you are not getting relief even after treatment, you can try 'Scrambler Therapy'. This therapy consists of 10-12 treatment sessions over two weeks period. It has " Set-up" phase of 40-45 minutes. Where there are complex conditions this treatment may require additional treatment sessions. It is by means of disposable Surface electrodes applied to the skin area corresponding to the pain areas involved.

I looked into this too - can anyone tell me if they had this done? I'm desperate.

My pudendal pain is expressed rectally as well. Sometimes it gets unbearable and I come back here looking for hope and help.

Sorry, I can't answer your question about scrambler therapy, Saint. Just sorry to hear you are still struggling with pain.

Violet

scrambler" therapy is an effective, noninvasive treatment for various types of cancer-related neuropathic pain, including chemotherapy-induced peripheral neuropathy (CIPN)