I found this site almost a year ago when it was just a website under construction with very little information.
Today, when I revisited I was DELIGHTED to find how much information it now has, and how many people are
suffering from this aggravating and painful condition. 5 years ago I thought I had PSAS which is now called PGAD.
I was a member of a forum with a lot of women who had NO idea what was wrong with them, or what to do about it, just
like me. 5 years of useless tests, and useless doctors who had NO idea what to make of me almost bankrupted me. Most of them thought I was neurotic, or a victim of child abuse, and even a sex addict, and it was embarrassing and frustrating.
I have not been formally diagnosed with PNE, but am going to a pelvic floor specialist in November, armed to the teeth with
years of internet research and all the same symptoms you have. I want my life back, because this pain has ruined my social life, made me feel depressed, and almost disabled. Wish me luck! Will post the results of the tests that I already KNOW will
show a VERY compressed nerve.
HELLO, SO GLAD TO MEET YOU ALL
Re: HELLO, SO GLAD TO MEET YOU ALL
Hi Chili,
Well, I remember when I belonged to a forum of women with PGAD and it seemed like the only answer was to learn to live with it the rest of my life. Thankfully I also found the pudendal forums and now I am essentially cured of PGAD. So I wish you all the best as you search for the right treatment and hope that you will be able to get your life back.
Take care,
Violet
Well, I remember when I belonged to a forum of women with PGAD and it seemed like the only answer was to learn to live with it the rest of my life. Thankfully I also found the pudendal forums and now I am essentially cured of PGAD. So I wish you all the best as you search for the right treatment and hope that you will be able to get your life back.
Take care,
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.