Can someone give me there expert opinion on my case please

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Re: Can someone give me there expert opinion on my case plea

Postby Frank » Fri May 19, 2017 5:26 am

Hi Violet,
Thanks for the encouragement. Yes I am praying that Tracy can help me and if she didn't think so I guess she wouldn't have told me to come. She is going to evaluate me and do 2 more treatments. It's a 3 day thing. I am going to try to relax while I am there and go to the beach too. She is supposed to be very thorough. She will have an opinion at the end of it and then I will have an idea as to if I will be stuck with this. She will be the first person that I have talked to who actually knows about this issue. The good news that I have is that my hip is continuing to improve faster now. My si joint pain has improved a lot from where it was before surgery. This leads me to think that it should all go away with more rehab and time that is the si pain I am talking about. On the other hand my nerve issues with sitting pain and penis issues are not going away. This continues to consume me every day and I will not get my life back if I can't get rid of those symptoms even if my hip gets to 100 percent. As long as I have those symptoms I can't get rid of the psychological and mental sickness I have developed. This is because of the pain and the fact that I am prevented from doing the things that make me happy in life. I desperately need these things for my survival. I can't handle the isolation that this puts you in. It is a direct result of this everyone who has it knows that. I get out some to go eat or do something boring. I sometimes will go meet a friend for a short visit however I am not driving yet. It's not that often I can do that though or even call someone back because of the mental trauma I have experienced. I desperately want to get rid of this and get out and live but for now my mind is ruined. I am scared of what will happen to me. . . I don't mean to go on and on but I know you understand this from what you have been through and I find it comforting to talk to someone who understands this because nobody else does. I have no freakin idea how you survived those 2 yrs of bed rest with isolation that you described. I may have asked you this before I don't remember but if I have some compressed nerves in the paraneium area that got that way from the fall do you think that they can rebound on there own after this much time? Or would if require a decompression surgery to try to accomplish ?
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Re: Can someone give me there expert opinion on my case plea

Postby Violet M » Sun May 21, 2017 5:21 am

Hi Frank,

Yes, I understand how isolating PN can be. It's hard to maintain friendships and relationships when you can't sit. I guess what kept me sane was being able to come on the forum and talk to other people and realize I wasn't alone. I had a computer set-up that allowed me to go online while lying down. Some of my closest friends are people I met on this forum.

Hopefully you will be able to resolve your pain and pelvic issues with PT and conservative therapies. If you have pelvic instability, misalignment, and strained ligaments that won't heal, you might also want to consider prolotherapy to strengthen the ligaments. But hopefully Tracy will be able to steer you in the right direction.

PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Violet M
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Re: Can someone give me there expert opinion on my case plea

Postby solarmom » Tue May 30, 2017 9:09 pm

I'm 3 years in from starting my journey with this PN pain.
I didn't really start to improve until last summer when my pelvic pt mixed internal work
with strengthening my glutes and hamstrings. I had SI pain for a few years before and they diagnosed a ligament strain.
So I think you may improve with some pelvic pt plus the regular pt. I've improved in terms of the perineum pain, which was the Obturator internus impacting the nerve. working on that meant i could walk longer without flaring. Being able to sit meant my piriformis stopped clamping down on the nerve too. I totally understand the mental aspect. especially when it impacts such sensitive areas. the deep breathing didnt relax my pelvic floor much but did help me mentally by calming the system. So I breathe deep, distract as much as I can, get enough sleep and when possible try doing the stuff that makes me feel like myself
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