PN my story.

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Re: PN my story.

Postby Violet M » Fri Feb 10, 2017 5:06 am

Some people find that a combo of lyrica and cymbalta together is more effective than either one alone. We also have heard from some forum members that lyrica works for them but sometimes it has side effects -- like weight gain.

To answer your question about how soon it works you can check the following link: https://www.lyrica.com/frequently-asked-questions

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: PN my story.

Postby Rob73 » Fri Feb 10, 2017 8:27 pm

My pain is always the same from the moment I wake up untill I go to bed. It is stricty related to the bathroom.
Some symptoms seems not to match with Classic PN. I'm a bit disheartened
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Re: PN my story.

Postby Rob73 » Fri Feb 10, 2017 9:15 pm

Thanks Violet,
I had those side effects with no pain rilieve.
I only hope to be on the right path....
I wonder why the pain doesn't diminish when I am in bed
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Re: PN my story.

Postby Violet M » Sat Feb 11, 2017 5:04 am

I'm not sure there is an exact classic PN. On many days I had pain 24/7 unless I could get to sleep.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: PN my story.

Postby Andy_Pablo » Sat Feb 11, 2017 2:59 pm

I also had pain near constant.
Credula vitam spes fovet et melius cras fore semper dicit...
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Re: PN my story.

Postby Rob73 » Sun Feb 12, 2017 6:41 pm

Andy, Violet,
It's very important receiving info about personal experiences because this is a very mysterious disease.
I read Andy's story but I could't find what happend after ...
Could you please let me know if you feel better and why?
I know Violet eventually got better after surgery but I hope not to ...
Thanks a lot
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Re: PN my story.

Postby Andy_Pablo » Mon Feb 13, 2017 3:54 am

I am still in the lengthy process of hopefully recovering. I will know more over the course of the next twelve months. I will update my thread in the UK section. In summary, I have had some minor improvements since surgery, but its not enough to gramt me my life back. Im hopeful things will improve...
Credula vitam spes fovet et melius cras fore semper dicit...
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Re: PN my story.

Postby kathyd » Thu May 11, 2017 11:12 pm

Hi Violet,
Thx for posting about alternating between hot and cold, for relief from pain.
I use ice all the time as it feels good, (maybe I use it too much)
but my PT also recommends heat, as my pain comes from hypertonic muscles that are clenched like a stuck fist.
Fear and anxiety based on the horror stories 'Ive read over years of research have driven my pain, quite a bit.
as any worrisome thought ups pain immediately, I realized.

Tho I've had some considerable improvement for the past couple years due to a great PT, her trigger point work,etc and her reassurance,
I've had an increase of pain lately.
My PT also mentioned switching back and forth from the heating pad to ice to kind of 'trick" the brain.

Has this worked well for you, too or did you always do the hot water/ cold water thing instead?

Is there any med that worked well for you when (if you had pain from sitting)?
I may be switching my meds a bit, but I know that pain doctor is grasping at straws and guessing when it comes to pelvic pain,
Thx for any info about the above!

Best regards!
Kathy
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Re: PN my story.

Postby Violet M » Sun May 21, 2017 5:08 am

kathyd wrote:My PT also mentioned switching back and forth from the heating pad to ice to kind of 'trick" the brain.

Has this worked well for you, too or did you always do the hot water/ cold water thing instead?

Is there any med that worked well for you when (if you had pain from sitting)?


Kathy, I used a gel ice pack and a heating pad too and they helped some....but they did not penetrate deeply as well as the hot/cold water did.

I didn't use a lot of pain meds. Opioids worked to some extent to take the edge off the pain but I didn't want to develop a tolerance or addiction so mostly I tried not to sit and tried to use ice and heat for pain relief.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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