Male with testiculcar/penile numbness + pelvic pain

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.

Male with testiculcar/penile numbness + pelvic pain

Postby jhw325 » Sun Feb 19, 2017 7:31 am

Hi, all.

I am so happy (borderline emotional) to find this community after a year of issues.

Around April of last year I was training for my first Ironman. I had done shorter races and was ready for a long one. I got a new bike and started to have testicular numbness in my right testicle only that would linger days/weeks after my rides. I tried different seats and all sorts of modifications under the guidance of a fit specialist. Unfortunately, I had to give up the sport after having consistent testicular numbness, again only on the right side, and occasional penile numbness, again only on the right side. This was on and off and there have been times were my penis is mostly numb (maybe 20% feeling).

Currently, my right testicle is almost always less sensitive than my left and my penis has on and off sensitivity issues. I do not have ED but during sexual intercourse can notice a difference - sometimes there is more sensitivity than other times. All of this is accompanied by varying pain and discomfort, generally on the right sight of my pelvis and lower bag. Sitting is terrible for me and leads to more numbness ASAP.

I have seen a physical therapist, pelvic floor specialist, holistic kinesiologist, spine doctor, and urologist. All but the spine doctor and uro had treated similar conditions but nothing "stuck". I can't really do much physical activity without creating more pain and numbness. The pain discomfort lately has been at the bottom of my right glute and right abductors. I do stretches daily as prescribed by the holistic kinesiologist but again, nothing has really helped.

I'm currently going "all-in" on this. It is starting to affect my life. I can't do any physical activity and sitting is terrible for me. I'm going to see a new pelvic floor therapist and urologist that she works with. This is all going to be in Seattle where I recently moved to.

I've never sought any true medical options outside of the urologist who didn't charge me and said he had never seen this. I got two MRIs of my pelvic region but both I was told didn't show any issues. I am grateful for any advice/help anyone can provide.
--Male
--PN since June of 2016
--Onset from cycling
--Main symptoms: Lack of sensitivity in right scrotum and penis. Made much worse from sitting. Still sexually active but sensitivity varies.
--Other symptoms: Right hip/abductor/thigh/leg pain
--Formerly very active but currently no activity and stand at work.
jhw325
 
Posts: 2
Joined: Sun Feb 19, 2017 7:04 am

Re: Male with testiculcar/penile numbness + pelvic pain

Postby Andy_Pablo » Sun Feb 19, 2017 1:55 pm

Hello mate. Welcome to the site. I recognise a few if those symptoms, so can empathise with your situation. If you have any questions then dont hesitate to ask. I wish you luck on your journey.

Andy.
Credula vitam spes fovet et melius cras fore semper dicit...
Andy_Pablo
 
Posts: 154
Joined: Sat Oct 11, 2014 10:27 pm
Location: Devon, England

Re: Male with testiculcar/penile numbness + pelvic pain

Postby Violet M » Mon Feb 20, 2017 3:42 am

Hi jhw,

Welcome to the forum. Sounds like you are on the right track seeing the pelvic floor PT and getting the MRI. Sometimes healing will take place just with lifestyle changes and avoiding activities that increase your pain. Dr. Jason Attaman is a pain doctor in the Seattle area who treats patients with pudendal neuralgia. He has posted some on this forum and he is listed on the pudendalhope website under the list of doctors. I don't know if you want to pursue any procedures yet at this point though. Hopefully you will see improvements just with lifestyle changes and the proper kind of PT.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
Violet M
 
Posts: 5467
Joined: Mon Sep 06, 2010 6:04 am
Location: United States

Re: Male with testiculcar/penile numbness + pelvic pain

Postby bdyer50 » Sat Apr 01, 2017 3:55 pm

Sorry to hear about your symptoms. The good news is that it sounds like you may have gotten off the bike in time to prevent any truly lasting damage. I wouldn't be surprised if you just have pelvic floor disorder, which is muscle spasming/tightness and is much more common than PN. If you stay off the bike and get some PT for it, you may find you'll be good as new in pretty short order. If you press on your perineum, does it feel sore? For me it does not. If it does for you, then it's quite possible that you have PFD, which is applying pressure to your pudendal nerve, which is causing the tingling and lack of sensation. If you relax the muscles with PT, you may be back to 100% very soon.

I rode for a couple of years and didn't really notice any symptoms other than a reduction in libido, which I didn't attribute to the bike right away. Then, one day -- BAM -- the ED hit hard, and lots of pain/tingling/muscle spasm came on as well. In my case, the damage to the nerve caused the muscle spasms --- not the other way around. Unfortunately, the nerves, once damaged, often don't heal. The saving grace for me is that sitting has never been an issue for me. So while my sex life is very bad, I can still work.

My initial onset was 3 years ago. Gabapentin works awesome for me. Clears up pretty much all the symptoms, including the ED. Unfortunately, it gives me panic attacks and thus sleepless nights, so I can't take it. I'm looking for other options, but the progress has been very slow and I'm losing optimism. I hope that you are finding relief of your symptoms. I would strongly encourage you to stay off the bike. I LOVED my bike but dropped it cold turkey. It's been gathering dust for 3 years now. A real bummer.
bdyer50
 
Posts: 5
Joined: Tue Jan 03, 2017 10:53 am


Return to WELCOME CENTER

Who is online

Users browsing this forum: No registered users and 1 guest