New on here, desperate for opinions on possible PN

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Re: New on here, desperate for opinions on possible PN

Postby Violet M » Sat Dec 02, 2017 6:42 am

I definitely can relate to that, John. I think you will eventually find something that works for you. ;)

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: New on here, desperate for opinions on possible PN

Postby flyer28 » Wed Jan 10, 2018 10:20 am

John do you have any news? My case is similar in some aspects, so I read thoroghly your thoughts.
The problem is that the highly sensitive ilioinguinal or genitofemoral nerve might not be the underlying reason, but a part of big picture - namely pelvic myoneuropathy. Difficult to treat, I am struggling with this condition more than 8 year, despite having had some good periods which are interchanging with flare-ups...Good PT is essential.
summer 2009 - episodic pain in genital area, mainly after sex, then also after any other physical labour
early 2010- major flare-up, lasting 3 months, later almost complete resulion of pain
late 2010 - chronification of pain
february 2011 - ESCW wave. major flare-up of debilitating pain, lasting 5 months
february 2012 - diagnosed CPPS with irritation of pudendal nerve, hypogastric plexus block
june 2012 - dorsal nerve block made by prof. Aszmann, no relief
november 2012 - worsening of pain
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