New on here, desperate for opinions on possible PN

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.

Re: New on here, desperate for opinions on possible PN

Postby Violet M » Sat Dec 02, 2017 6:42 am

I definitely can relate to that, John. I think you will eventually find something that works for you. ;)

PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Violet M
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Re: New on here, desperate for opinions on possible PN

Postby flyer28 » Wed Jan 10, 2018 10:20 am

John do you have any news? My case is similar in some aspects, so I read thoroghly your thoughts.
The problem is that the highly sensitive ilioinguinal or genitofemoral nerve might not be the underlying reason, but a part of big picture - namely pelvic myoneuropathy. Difficult to treat, I am struggling with this condition more than 8 year, despite having had some good periods which are interchanging with flare-ups...Good PT is essential.
summer 2009 - episodic pain in genital area, mainly after sex, then also after any other physical labour
early 2010- major flare-up, lasting 3 months, later almost complete resulion of pain
late 2010 - chronification of pain
february 2011 - ESCW wave. major flare-up of debilitating pain, lasting 5 months
february 2012 - diagnosed CPPS with irritation of pudendal nerve, hypogastric plexus block
june 2012 - dorsal nerve block made by prof. Aszmann, no relief
november 2012 - worsening of pain
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