New on here, desperate for opinions on possible PN

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Violet M
Posts: 6570
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: New on here, desperate for opinions on possible PN

Post by Violet M »

I definitely can relate to that, John. I think you will eventually find something that works for you. ;)

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
flyer28
Posts: 244
Joined: Fri Mar 25, 2011 11:29 am

Re: New on here, desperate for opinions on possible PN

Post by flyer28 »

John do you have any news? My case is similar in some aspects, so I read thoroghly your thoughts.
The problem is that the highly sensitive ilioinguinal or genitofemoral nerve might not be the underlying reason, but a part of big picture - namely pelvic myoneuropathy. Difficult to treat, I am struggling with this condition more than 8 year, despite having had some good periods which are interchanging with flare-ups...Good PT is essential.
summer 2009 - episodic post ejaculatory pain,
early 2010- major flare-up, chronification
february 2011 - ESCW wave. major flare-up, lasting 5 months
february 2012 - diagnosed CPPS with irritation of pudendal nerve, hypog. plexus block
june 2012 - dorsal nerve block, no relief
2013 - starting PT with moderate results
2014-2017 better periods interchanging with heavy flare ups
2018 first long remission (several months)
2019-2023 most of the time almost assymptomatic with cca 2 flare ups yearly
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