Going to see Dr Hibner 11/1/17

[Sk8rcruz]

Hi, I’m new to forums but have been referring to this site since 9/2015. At that time I started having pelvic pain about a week after a very painful tandem bike ride. I went to a GYN that was convinced I needed a hysterectomy due to fibroids (that have been there with no problems for ove 20 years). He didn’t take the pain seriously, didn’t think fibroids would hurt that bad, but I had a hysterectomy anyway. The perlvic pain-which was like a stabbing and pinching of what I thought was my cervix-was gone when I healed up. Fast forward to June 2017 and undefined pelvic discomfort led me to my PCP. I took bactrim x 2 rounds as the pain increased, then a shingles drug, with no relief. Went to a (different) GYN who first suggested it was a nerve problem. She had my PCP start me on gabapentin. I saw a urologist to rule out urological causes. Saw a neurologist, who, after 3 visits and a MRI with dye, suggested I was “depressed,” or had pudendal nueralgia. I had my psychiatrist rule out depression! This neurologist did not have the knowledge to treat pudendal nueralgia so he referred me to UCSF Nuerology dept. it took 3 WEEKS to get scheduled. Because the first neurologist put “possible depression” on my chart, the new Nuerologist wanted to do a consultation rather than get testing started. The visit would be 6 weeks out! I called UCSF and asked if anyone in the neurology department could treat pudendal nueralgia. I received a call back an hour later explaining that I would have been referred somewhere else since no one there treats it. By then I had found the Arizona Center for Chronic Pelvic Pain and started registration. I am elated and hopeful I can get relief! I start with a Pain Management clinic near my home in the Bay Area on 10/17, as my PCP has been doling out 30 norcos a month for breakthrough pain. From what I understand, my journey is not untypical. I’ll keep to forum updated!

[Violet M]

Yes, it is typical, unfortunately. Hopefully you are on the right track now and will be able to get some answers. I think there are some excellent PT's in the Bay area who treat people with pudendal neuralgia. http://www.pudendalhope.info/node/63#CA Maybe you could get some input from one of them also so that you have someone locally
who can help you. Good luck with your visit to Dr. Hibner.

Violet