New here - Chronic Urethral Pain, wondering if PN

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New here - Chronic Urethral Pain, wondering if PN

Postby Tadams25 » Tue Oct 31, 2017 10:40 pm

Hey, everyone.

26/Female/Ohio

Ever since I was a young girl, I've had reoccurring urethral pain, typically activated by urinating. As I got older, the frequency increased. As an adult, I assumed my urethral pain was due to UTIs, despite not having other symptoms of a bladder infection (no frequent urinating, bladder pain, etc). I would usually just get prescribed antibiotics, and then wait for the next flare up. A couple months ago, I began to realize that my urethral pain seems to be at its worse while traveling; hence, long car/plane rides. I wouldn't necessarily feel the pain while sitting; however, if I were to sit for more than 2-3 hours, I would begin to feel pain in my urethra, and then intensified after urinating, and lasting for hours. On days when I am mostly walking or lying down, my symptoms don't flare up. My partner is the one who discovered Pudendal Neuralgia, and it's the only thing that I resonate with. I've been tested for STDs and my urine doesn't show signs of infection -- which leads me to believe that there is a nerve or structural issue going on. I told my OBGYN about PN, and she basically gave me ideas on how to manage the symptoms after they flare up (ice packs, etc.). I'm tired of being in tears due to the pain that I experience. I cannot live a life unable to sit! I am only 26 AND 2 months pregnant with my first child, and I am worried about this issues amplifying more than it already has. Like I said, this issues seems to have been developing and increasing over time -- and the only injury-related thing that I can think of is when I was little, I jumped up and landed on my butt, directly on the hard ground -- it knocked the wind out of me. I am not sure if this is the activating event?

So far, the only thing that has provided any relief is applying Lidocaine on the area, but even that only does so much.

Should I be seeking a urologist or neurologist, would you say? I'm not sure how many treatments I can undergo, considering that I am pregnant, but I would like to know what kind of specialist I should be looking for.

Any insight, recommendations, etc. is welcomed and appreciated!

Thanks a bunch!!!
Tadams25
 
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Joined: Tue Oct 31, 2017 1:49 am

Re: New here - Chronic Urethral Pain, wondering if PN

Postby Hopeitworks » Wed Nov 01, 2017 12:04 am

If I were you I would start with a Urologist to determine if you have IC. While you are waiting for an appointment try the IC diet and OTC medication named Prelief.

Here are a list of doctors that treat PN related issues.
http://www.pudendalhope.info/node/54

Congrats on the pregnancy! I agree with you that being pregnant can make your symptoms worse, but try not to stress over it. I know easier said then done. Use ice because it is the best thing in the world! Let us know how your appointment goes.

Hope
Hopeitworks
 
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Re: New here - Chronic Urethral Pain, wondering if PN

Postby April » Wed Nov 01, 2017 3:45 am

Hi Tadams,

I wouldn't see a neurologist, and I think a urogynecologist would be better than a urologist. Did the obgyn try to do a diagnosis with a pelvic exam and/or a review of your symptoms? What you describe does sound like pn (burning with urination and sitting making it worse), but it would be useful to get a more formal diagnostic assessment if you haven't already. A pelvic floor physical therapist can be helpful with diagnosis and may have doctor suggestions. This website lists doctors who specialize in pn, so you can review that list in case you're close to one. University clinics and hospitals are also good places to check.

I couldn't survive this problem without ice, so I do think that is a good (albeit impractical) way to deal with the pain while you're waiting to see a doctor. It may be especially useful given that you're pregnant (congratulations!) and will want to limit your medication intake.

April
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