Pelvic pain for 5 months, my story..

[Balenchaga]

Hi everyone. This is my first post on here. I wanna share my story and hopefully find people who are going through a similar situation so we can help eachother out.. i am french by the way so i will try my best to explain myself!

I'm 23 years old and i live in canada. Five months ago, something happened which seemed to have triggered something in my pelvic floor. Let me try and explain my best. After a drunken night out with friends, i did something really stupid. We were walking down the street and we saw this huge television on the corner of the street. I dont really know what went through my head at that time, we were just being really stupid and we were really drunk lol so anyways i kicked the television really hard with my right foot. I didnt think much of it right after it happened, its only the day after that i realized something had gone wrong. (I hate myself for being such a retard when i drink, like seriously what was i thinking! Lol)

When i woke up the next day, i felt different down there. I usually always wake up with an erection and that morning i didnt. I tried to stimulate myself but i really couldnt get hard. I kind of started to panic.
I also noticed that i had hard flaccid. My penis was just really small and hard to the touch.
I was having back pains, mainly on the bottom right side, which makes sense because i kicked with my right leg.
I also had this weird pain in the penis, in the perineum, and an hourglass shape when i would go Pee. Oh and also, a weird sensation of tension in my anus. As if i had something Stuck, and this weird feeling of always having to go pee (and never feeling like i was empty after doing so, with drops of urine drippling after i was "done")

I tried to keep calm and see if it would go away by its own. It didnt. I decided to see my doctor, who told me that my penis looked normal, but i asked him to give me a referall to see a urologist, which he did. I saw the urologist who told me that there was nothing wrong with my penis and that its really rare that guys my age have erectile Dysfunction.. he gave me a prescription for naproxen for the pain and sent me home saying things should get back to normal Soon. I had mentionned to him that i thought maybe i had pudendal neuralgia or some kind of nerve damage, but he told me : if you had nerve damage you would feel numb. The thing is : i dont feel numb but i do feel like i am less sensitive down There. I also experience pins and needles once in a while in the pelvic region. Or maybe a better explanation would be a sensation of electric shocks almost. It is definitely not constant, some days are better than others, but it bothers me and freaks me out.

Now, five months after, i am really starting to worry. Im scared to remain this way. Im scared i did permanent damage to some nerve. I still experience a hard flaccid penis, but mostly after ejaculating. I am able to get an erection, but i have to keep stimulating myself and i tend to lose it quickly. If i watch porn it makes things easier. (Sorry, too much information, but i guess details are important in this case). I still have the houglassing when i pee and when i am semi-erect, although it seems to have improved a little bit. I still have lower back pain but not always, and the electric shocks once in a while Aswell. The urinary symptoms have improved. I dont have to go pee every two seconds anymore so maybe i am improving..

I saw glenn cameron in cornwall last month, who performed shockwave therapy on me. after i told him i thought i had pufendal neuralgia, he told me that having pudendal neuralgia symptoms doesnt necessarily mean that you have pudendal neuralgia. Maybe i just have a slightly pinched nerve? Ive been reading about this disease so much and many people seem to experience much worse pain than me, so i an hopeful i might be in a very early stage... the shockwave therapy didnt do much for me but i only went once, maybe i should give it a try again. Maybe i need a few treatments. Glenn wasnt able to find the spot that triggers my pain, but he told me i should see a chiropractor.

I never recieved a real diagnosis. I am seeing my doctor again this next friday because i want to go see a neurosurgeon. I also want a prescription for clonazepam: when it all started, i had a few pills which really helped me relax down there.

I booked an appointment with dr. Andrew in cornwall this upcoming wednesday. He used to work with glenn i believe, but now they work separately. I have read great things about him and i try and remain optimistic that he will help me. I am also seeing a pelvic floor physio at the end of the month. Thank god there are such specialists near me, i know some people need to travel to find them..

I think this is the hardest thing i have ever dealt with in my life. I feel so alone and depressed. Im a good looking guy (i think! Not to sound like an ass) and this issue is giving me such a hard time. I'm gay and whenever guys hit on me now i act distant and cold and it fucking sucks. I had to turn down offers from this guy who ive had the biggest crush on forever. Imagine having to say no to your dream guy/girl. So heartbreaking.I wish i could be normal again. My friends have no idea whats happening to me at all except for my best best friend, and i just feel like i wear a mask everyday. I try and smile, joke and make everyone laugh but deep down i just feel so miserable.

If anyone reads this and feels like they experience something similar please reach out. Well support eachother during this difficult time. I am not gonna give up.

[Balenchaga]

Some details i forgot to mention:

I have morning erections again now most of the time. Also, i have this weird arousal feeling at times. Its definitely not constant and it diesnt give me an erection, its kind of Strange. So basically, now. I have morning wood but i am still unable to get an erection during the day like i would before. It feels like the only time im able to get hard is if i watch porn. I canT just get hard thinking of something erotic like before.

Another thing i forgot to mention is that glenn told me my hips might be a little bit tilted. I definitely wanna get an MRI to see if i have any sort of pelvic damage. I just hope my spine is alright, i dont wanna rely on viagra and cialis to have sex my whole life, gosh that would Suck.

[Violet M]

Hi Belanchaga,

I think all of us can relate to your statement about wanting to be normal again. It sounds like you are on the right track as far as seeking treatment. It may be too early to say whether or not you have pudendal neuralgia until you have more diagnostic tests and exams but I did want to add something to what Glenn Cameron told you. I think it's true that not all symptoms that seem like pudendal neuralgia turn out to be PN but also, PN may not be your primary diagnosis. Sometimes it is an accompanying diagnosis to an underlying problem such as sacroiliac joint dysfunction or strained ligaments. So, you really have to be a detective to figure out what is the underlying cause of the pain/symptoms, even if it is PN. I wish you all the best as you sort through this.

Violet

[Balenchaga]

Thank you Violet.

Reading so many people's stories has definitely helped me feel less alone in my situation, although its still a daily struggle.. i try and remain positive. I tend to always think about the worst and i feel like that aggravates everything.
I am waiting for my pelvic floor physio appointment, and i will do everything else to find answers.
I will post the results here.

[Violet M]

You are lucky to be near some great PT's. Hope your appointment goes well.

Violet