It's finally happened: I've lost my job [Waaaaah!]

Discuss here about Medical Disability claims and Insurance possibilities for PN treatment options

It's finally happened: I've lost my job [Waaaaah!]

Postby Grace » Tue Aug 20, 2013 2:23 pm

This has been my GREATEST fear since this horrible pain began. Having suffered with fibromyalgia and working for years and years and years to manage it and keep a job, when the PN pain hit big time, I was terrified that this might be the one to take me down. But I've got folks depending on me for healthcare, tuition, and other goodies like food and shelter!

I've done everything within my power to make this work. I took several months off for therapy and have finally gotten to a place where part-time work is possible, but my requested accommodations were too much to ask for. So they offered me a mockery of an alternative. I had to say no.

I'm afraid I will have to take legal action. I don't eant to. This is such a heartbreak. And pretty stressful on the food and shelter front. I am so disappointed and ANGRY!!!

Waaaah!
Anal/rectal pain began 12/12 | Pain advanced to entire pelvis by 2/13 |
PF PT 2/13 to 7/13 |Acupuncture 7/13 to present
Pain is CONSTANT, made worse by standing, walking, kneeling
UNBEARABLE with sitting |Cushions mock me
20+ years of fibromyalgia | Interested in not losing my marbles...
My goal: To find creative ways to live and work with PN, while pursuing wellness.
User avatar
Grace
 
Posts: 56
Joined: Wed May 08, 2013 4:18 am

Re: It's finally happened: I've lost my job [Waaaaah!]

Postby janetm2 » Tue Aug 20, 2013 8:53 pm

Grace,
I am devestated for you. I am so sorry to hear this and had the same fears but was lucky to get treatment and surgery to avoid it. I hope you can get swift legal help for yourself and other dependants.
Janet
2007-08 pelvic muscles spasms (per colon-rectal dr.) treated by ElectroGalvanicStimulis(EGS). 6/27/10 sat too long on a hard chair- spasms, EGS not work Botox help, spine pain dr cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain started/surgery at age 21. TG gave me back enough sitting to keep my job and join in some social activities. I wish the best to everyone!
janetm2
 
Posts: 947
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: It's finally happened: I've lost my job [Waaaaah!]

Postby Grace » Wed Aug 21, 2013 12:43 am

Thanks, Janet. For several months, work has been my only motivation to persist with the slow crawl of progress. I knew that every bit I got better would make a difference. Now I don't know how I will keep improving with no medication.

When I consider my quality of life without medication and the magnitude of our financial and family healthcare needs, I really feel like giving up.
Anal/rectal pain began 12/12 | Pain advanced to entire pelvis by 2/13 |
PF PT 2/13 to 7/13 |Acupuncture 7/13 to present
Pain is CONSTANT, made worse by standing, walking, kneeling
UNBEARABLE with sitting |Cushions mock me
20+ years of fibromyalgia | Interested in not losing my marbles...
My goal: To find creative ways to live and work with PN, while pursuing wellness.
User avatar
Grace
 
Posts: 56
Joined: Wed May 08, 2013 4:18 am

Re: It's finally happened: I've lost my job [Waaaaah!]

Postby nyt » Fri Aug 23, 2013 1:20 pm

Grace, I am so sorry to hear about this. When I was still working my job was great trying to do everything to keep me working but I just got so I couldn't. I've been on disability for almost 5 years and it sucks. Like you, I have another PNE friend who lives in my area whose job would not accomodate and she finally had to go out on disability. Get yourself a good disability attorney. Unfortunately, they aren't cheap. Go to social services and so what medical you and your family qualify for. You my qualify for Medicaid so some other state assisted program. You won't qualify for Medicare because you have to be on disability for 2 years. The medications you take, talk to your doctor that prescribes them and see if he can keep you going on samples. Also, most drug companies will give free medications if someone is in financial crisis. Give those companies a call and see if you can get some of them to provide you with free medication until you get this figured out. Unless someone has PN people have no idea the financial burden this disorder puts on families.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
nyt
 
Posts: 1154
Joined: Sun Oct 31, 2010 3:24 am

Re: It's finally happened: I've lost my job [Waaaaah!]

Postby helen1000 » Sat Aug 31, 2013 5:31 pm

Hello Grace,

I have been through this. I was in pain. I tried to alternate standing and sitting and only damaged my spine. I tried to work from home from bed but it gave me abdominal spasms. Before that I worked for 10 years with fibromialgia.
But pain was so intense that one day I was on the phone with client and I realized that I could not think about anything but terrible pain. I went to short term disability and did everything doctors said hoping to recuperate and go back to work. Then it was LTD and they kicked me out. Then my company kicked me out. I think that they had right to do so because I am out of work for a long time and I could not be productive now with all my issues.
But every step was very painful. Even decision to work from home. I cried. I thought how I will live in complete isolation. But I was to lose even virtual contact with people and sense of purpose of my existence.
It is difficult. But do not give up. Some people recover and go on with their lives. Violet can tell you this. It really takes time and effort and determination.
The good news that I feel mentally better. Depression is gone. I am a fighter that fights for my own survival and my family well being. I do not have time to feel sorry for myself.
Try to take it this way.

Love,

Helen
8 nerve blocks rel 6 w.Met Dr. Peters,Dr. Antolack.Dr. Peters pacemaker,Dr Antolack TG operation.Maigne s.Internal PT at Dr Peters Nothing.PFCN block rel 6 w. PFCN RFA.Nothing.SI joint RFA.Nothing.Left scar tissue removal.Good.SIJD. PT of SI joint ME, and Prolo of SI and PS.Lumbar spine facets turned left. ME. T10-12 facets too wide.T10 turned left.ME and Prolo.Labral tears in left hip, spurs.Will have operation at 09/18/13,Met with Dr Conway.EMG shows left PN problem.Good impression of Dr C.
helen1000
 
Posts: 181
Joined: Fri Jul 20, 2012 7:07 pm
Location: Michigan

Re: It's finally happened: I've lost my job [Waaaaah!]

Postby helenlegs 11 » Sat Aug 31, 2013 8:20 pm

Hi Grace,
Commiserations, it's '$!¬!T@!!' isn't it!
In a similar situation, although thankfully mine's not, sorry wasn't, the only income, just a 'comfortable' half, which can (and has) create such self imposed guilt.
I have battled British bureaucracy for so long and hate the fact that it is my life in their hands but I really have no alternative; well the alternative would be absolutely no life, just pain.
Obviously there is a different but almost similarly and seemingly insurmountable system? which I have come to the conclusion is down to the fact that the general medical community does NOT understand pelvic pain properly, especially pelvic nerve pain. I thought that ignorance was no excuse but apparently it is. :shock:
Keep the anger. . . . but make it work, tenaciously for you; not against your own health. Seriously, it can take such a toll. NYT and Janet are completely right, get legal help. Also get as much diagnostic, medical information about your own condition, mentally as well as physically, including the effects of medication as you possibly can.
Good luck,

Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
User avatar
helenlegs 11
 
Posts: 1783
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: It's finally happened: I've lost my job [Waaaaah!]

Postby Violet M » Sat Aug 31, 2013 10:02 pm

Grace, I am really sorry to hear about your job loss. I guess I'm not really up on what the Americans with Disabilities Act says. I'm not sure what type of accommodations you are needing but if it's a lying down work station, there are ways to achieve this without spending too much money. I have set up a workstation in my home that allows me to lie down (not that I need to that much anymore) but it's so comfy I still use it anyway :lol: Good luck.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
Violet M
 
Posts: 5462
Joined: Mon Sep 06, 2010 6:04 am
Location: United States


Return to INSURANCE & DISABILITY ISSUES

Who is online

Users browsing this forum: No registered users and 1 guest