Are there any known women who has had Cyroablation?

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.

Are there any known women who has had Cyroablation?

Postby Lindsey89 » Fri Apr 07, 2017 9:59 pm

I've just found out by this forum there is a Dr. At Emory in Atlanta who does this. I've been to Emory about pain,saw someone else but this young guy knew of PN but wasn't very helpful, as I don't think he knew a whole lot about it.

Is the out come more likely to work if you've had good experiences with nerve blocks? Bc last time I had nerve blocks it didn't do a lot for me.

I believe my PN is due from bladder cystoscopy gone wrong and then a genital femoral hernia repair with mesh really affecting my thighs but PN also got worse after that. I'm really interested in Cyroablation.

So I have PN worse on left,but also on right. I have interstitial cystitis (diagnosed by symptoms by Dr.Echenberg) and he also diagnosed me with PN based on where he would examine me and I had pain. It was more mild back then though, in 2015. The nerve blocks didn't really do much for me at the time. Trigger point injections from a different Dr. Done last year didn't do much as well and the little it did do lasted less than 24 hours. I also have Lyme disease which is very inflammatory and makes other things difficult. But I'm interested in learning about this.
Wondering if it could help me,even though I don't know the exact cause of what has given me these symptoms. I also have female pain in female parts/nerve sensitivity and arousal type pain sometimes. I'm also hoping this could possibly help with that. Interested in this.
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Re: Are there any known women who has had Cyroablation?

Postby nyt » Sat Apr 08, 2017 2:09 pm

If you look on the top right corner you will see a search box. Type in "cryoablation" in that box and you see all the threads that have discussed cryoablation.

Stephanie, has been to Dr. Prologo in Atlanta for this procedure. You could PM her. I know someone who use to be on this forum who had cryoablation done by Dr. Prologo and is doing great, not cured but is very happy with the results.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Re: Are there any known women who has had Cyroablation?

Postby Lindsey89 » Sat Apr 08, 2017 4:07 pm

nyt wrote:If you look on the top right corner you will see a search box. Type in "cryoablation" in that box and you see all the threads that have discussed cryoablation.

Stephanie, has been to Dr. Prologo in Atlanta for this procedure. You could PM her. I know someone who use to be on this forum who had cryoablation done by Dr. Prologo and is doing great, not cured but is very happy with the results.
Thanks. I did PM her but haven't heard back yet. I've seen a couple of posts about it,but maybe there is more I haven't seen. The person that's doing better, are they able to get around more now? Can they sit ok? Did they have success with nerve blocks first? Bc I haven't had much success with nerve blocks or trigger point injections. The trigger point injections just made the areas feel very heavy and didn't last as long as 24 hours. I didn't know if the Cyroablation has a better chance of you've had success with those things. I'm wondering if this procedure helps with nerve pain in various places down there, not just on the pn. Bc I have female pain also and bladder.
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Re: Are there any known women who has had Cyroablation?

Postby stephanies » Sat Apr 08, 2017 11:03 pm

Lindsay,

I did not receive a PM from you, but saw this post. I had cryo last June that did not help me. I had a terrible flare that lasted for about a week after cryo and then returned to my normal pain. My PN is definitely causing my pain as I had nerve blocks both before cryo and after and I do get temporary relief of all my pain from the PN blocks. The cryo results seem quite mixed from people who have had it done that I have been in contact with. Some are cured, some are a little better, some are the same, and some are worse. If you search this site for "cryo" you should be able to read about a couple others who have had it done.

Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13.
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Re: Are there any known women who has had Cyroablation?

Postby Lindsey89 » Tue Apr 11, 2017 7:36 pm

stephanies wrote:Lindsay,

I did not receive a PM from you, but saw this post. I had cryo last June that did not help me. I had a terrible flare that lasted for about a week after cryo and then returned to my normal pain. My PN is definitely causing my pain as I had nerve blocks both before cryo and after and I do get temporary relief of all my pain from the PN blocks. The cryo results seem quite mixed from people who have had it done that I have been in contact with. Some are cured, some are a little better, some are the same, and some are worse. If you search this site for "cryo" you should be able to read about a couple others who have had it done.

Stephanies
Stephanies, sry you didn't get my message but thanks for responding. This is disappointing to hear. I was hopeful in this. I don't understand why it makes some go into a flare or feel worse by having procedure. I read some on Dr. Prologo. It seems as though he really wants to help and that he does them ct guided. He's had success yes but of course there are those I guess it didn't help. I just wish I understood why and how to know if it's something I should try or not if I do go see him. I have pn pain on the left and right side plus nerve pain all through female area. I'm not sure if this can help other areas associated with pn or not.
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Re: Are there any known women who has had Cyroablation?

Postby April » Wed Apr 12, 2017 7:36 pm

Hi Stephanies,

Thanks for the info on your flare with cryo. I was actually going to post a question today, asking if those who've gotten it had a flare (I knew from your other posts that it had not reduced your pain but I wasn't sure if it created a flare). How incredibly disappointing that must have been to have this (seemingly promising) treatment not work. Despite the mixed results, I've decided to try it, and I need to schedule it around my work obligations, so now I know it will be risky to assume I'll be normal (i.e, my normal level of burning) within the first week.

Thanks,
April
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