Pregabalin long term

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.

Re: Pregabalin long term

Postby Violet M » Mon Nov 13, 2017 7:29 am

Ouch, lifting heavy stuff could definitely be a factor. The drugs could play into it too but it seems really important to at least get an evaluation for musculoskeletal problems that could be contributing to the problem -- like chronic ligament strain or SI joint dysfunction related to the heavy lifting.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Pregabalin long term

Postby Joelle7979 » Mon Nov 13, 2017 1:27 pm

Can those all be seen on a regular MRI?. I will definitely look into that stuff. This would be so much easier if pgad and pn was caused by one thing only. Thanks again.
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Re: Pregabalin long term

Postby Violet M » Tue Nov 14, 2017 7:02 am

No, an MRI wouldn't necessarily show musculoskeletal problems like sacroiliac joint dysfunction or ligament strain. A good manual therapist or pelvic PT should be able to evaluate for those types of problems.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Pregabalin long term

Postby Joelle7979 » Tue Nov 14, 2017 12:54 pm

Oh, I wasn't sure. I think I'm gonna ask my doctor to not take me off Lyrica till I can get through the holidays. I start cbt tomorrow and will try to find good PT. If this doesn't get me anywhere think I'm going to make 6 hour drive to Dr. Echenberg. Thanks so much for all the great advice. Oh, and by the way. The Doctors Show yesterday had a episode on about PN.
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Re: Pregabalin long term

Postby Joelle7979 » Tue Nov 14, 2017 7:37 pm

Also just found out my insurance won't cover pgad stuff cause there is no such code. So now everything out of pocket. This is stupid! I'm gonna see if she will try a different code for my insurance. :(
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Re: Pregabalin long term

Postby Violet M » Wed Nov 15, 2017 6:25 am

Have the doctor code it as chronic pelvic pain. Dr. Echenberg considers PGAD to be a pain syndrome and I would agree with him.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Pregabalin long term

Postby Joelle7979 » Wed Nov 15, 2017 11:09 pm

Called my doctor, they won't change code cause they consider pgad a sexual arousal disorder not pain disorder. I told them they are wrong. They said if they change code it would be insurance fraud. Time for knew doctors. Also why does insurance cover male arousal disorder but not female? Makes no sense. I'm hoping neurologist will maybe help better. Thanks for letting me vent.
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Re: Pregabalin long term

Postby Violet M » Fri Nov 17, 2017 4:43 am

Are you having any pain at all? If it felt like you had a UTI but there was no bacteria in the culture that sounds like pain to me. If so, I don't see how it could it be considered insurance fraud. Makes no sense at all if you ask me. Maybe you could appeal this to the insurance company. Maybe time for a new doctor if they won't help you out with this.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Pregabalin long term

Postby Joelle7979 » Fri Nov 17, 2017 2:33 pm

Violet, I totally agree. I had pain when they thought I had UTI. They thought I had kidney stone because of the lower back pain into the buttock area. I still have the stabbing buttock pain. My bladder doesn't hurt as much anymore, just frequent urination feeling. It does sometimes feel like I got kicked between legs, not sure if that makes sense? I also am feeling pgad in rectum and vagina area also. I am getting what I think may be restless leg. My husband says I kick him at night and I will wake up with my leg tingling. I go back to obgyn Tuesday. If she wants to be difficult I will be looking for new doctor. I'm not sure if neurologists will understand more. I went to psycologist the other day for CBT. The breathing does help calm me when I flare. My doctor thinks anxiety is bringing on flare, but I don't have anxiety till I have a flare. So frustrating. I am trying to make my doctors aware this is a real problem and people with this need to be taken seriously. Thank you again for your response.
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