Vaginal & rectal valium experiences?

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.

Re: Vaginal & rectal valium experiences?

Postby nyt » Sat Nov 27, 2010 6:03 pm

Cora, that is a great idea to have one location for medications. I have terrible side effects from all the meds I have tried, which is a long list, they give me tachycardia, argh. I am always looking for new ideas to ask the dr.'s about. I am very interested in trying supporitories with hopes that it might minimize side effects but reading this thread it may not be the case. I plan on asking Dr. Howard when I see him the end of Dec.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Re: Vaginal & rectal valium experiences?

Postby Violet M » Sun Nov 28, 2010 1:57 am

Cora wrote:Regarding meds in general, is there a place where we could list the different classes of drugs and then have people comment on them and their combinations. A reference place for all of us ?

cora


Great suggestion. I will take this to the mods and see if we can organize it. Can you help us come up with a list of sections to include?
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Vaginal & rectal valium experiences?

Postby Cora » Mon Nov 29, 2010 5:10 am

sure will. i'll send you a list by pm
[color=#8040BF]Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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Re: Vaginal & rectal valium experiences?

Postby WishIwereNumb » Wed Dec 01, 2010 5:54 pm

So sorry to hear about your experience with the suppository pain reliever. Pardon my naivete, but I wasn't even aware that diazepam suppositories existed. Is this something new or have they always existed? Either way, you're probably better off sticking with the oral medication. Interesting how taking the suppository caused you to become "high." You would have thought that putting it in a local area would cause that area to become numb as opposed to the entire body. I guess the only thing I can suggest is that you be careful and see if you can alter the dosage in any sort of way. Good luck!!!
Gosh, I sure do wish I was numb. ;-;
Medical alerts would also be essential for emergencies too!
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Re: Vaginal & rectal valium experiences?

Postby A's Mommy » Thu Dec 02, 2010 3:06 am

I don't know if I mentioned my experience w/ vaginal diazepam. I took it for close to 5 months and I believed it would have helped me had I NOT had a PT at the time that was digging vicariously at my obturator internus muscle, flaring against what we now know was my scar entrapped PN at the Alcock's canal. I think vaginal diazepam is a great source of pain relief, and you may have to modify the formula a bit; my original formula was pure diazepam powder, MBK (a fatty acid) and silica gel. These suppositories did not need to be refrigerated. However, they dried out and irritated my vagina to the point where I thought I had a constant yeast infection. I asked my brother about the ingredients, (who is a chemist) and he said "well, silica gel DRIES THINGS OUT... it's the stuff they put in your shoe boxes!" I talked to my compounding pharmacist, and he switched the formula to pure diazepam powder in pure cocoa butter (needed refrigerated). Soothed the vaginal mucousa, created no infection, and helped. Although, I went downhill so fast from the vigorous PT Nazi... I bet when I get a little more post op I could go back to it, but for now, I'm using oral valium. Vaginal valium was only used at night and never made me high, it just helped me sleep like a baby.

AM
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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Re: Vaginal & rectal valium experiences?

Postby Charlie » Fri Dec 03, 2010 1:24 am

A's Mommy wrote:I don't know if I mentioned my experience w/ vaginal diazepam. I took it for close to 5 months and I believed it would have helped me had I NOT had a PT at the time that was digging vicariously at my obturator internus muscle, flaring against what we now know was my scar entrapped PN at the Alcock's canal.... Although, I went downhill so fast from the vigorous PT Nazi...



Lol I can relate to your PT experience. I have been on the receiving end of some truly dreadful PT. I used to flare up badly from vigorous PT. I now know the flare up was not a good sign as I was told but because the PT was pressing into a nerve entrapment also in my alcocks canal. This is a quote from a trigger point article. I think he has a point!

Consider this: If trigger points are not a fibrotic alteration in muscle tissue, then what is with all of this ischemic compression, deep tissue break down of adhesions,knobbles, knuckles, rigid fingers, elbows and knees all about? If, as the current research'strongly suggests, these pain sites are inflamed and abnormal nerve endings, then what in the world are we doing poking things into excited, painful nerves? Imagine you have a painful tooth. Do you want me to poke a fork into it? Does that sound therapeutic to you?
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
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Re: Vaginal & rectal valium experiences?

Postby Karyn » Fri Dec 03, 2010 3:26 pm

:lol: Excellent response, Charlie! :lol: I used to think I was a freak not benefitting from "vigorous internal PT", as I was told I should be.
It never made sense to me to apply extreme pressure and needling to unspeakably painful areas but I was always told it was to circulate blood flow or some silly thing.
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Re: Vaginal & rectal valium experiences?

Postby pianogal » Fri Dec 03, 2010 11:21 pm

I'm so grateful to have had good PT with Julie Sarton at UCI medical group... I never once felt worse after PT. I always felt relieved, a little lighter... and emotionally happier too as she is so sweet and caring. Although the PT didn't fix me, it did free up areas immediately after (but they didn't solve the pain) and it also made my vaginismus go away. I am grateful to her... and the emotional support was priceless.

So, if you have PT that makes you worse, run like the wind. PT is not supposed to be like that. A good PT will do it right.

I know, because one time an intern of hers worked on me for 3 minutes, and i had a huge flare afterwards with migraines.... experience versus inexperience = huge difference.
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
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Re: Vaginal & rectal valium experiences?

Postby GraceUnderFire » Sat Dec 04, 2010 11:43 am

Her Majesty,

Would you share the dosages of the neurontin/ultram/valium that you take? My pain doctor is unbelievably useless and I have to suggest things to him to try. But when I asked him about adding valium he said I could take either ultram or valium but not both. Just curious as I am hoping to change pain doctors as soon as I can find one that has a clue around here!!

I did use valium suppositories once without any relief, but I am thinking that I should have tried them vaginally instead of just rectally and perhaps the dosage was off.

Anyway, thanks to whoever started this discussion again :)

Grace
Woke screaming from ab hyst 6/08
Diagnosed w/PN, ilioinguinal & iliohypogastric neuralgias 1/09
3 PN blocks w/Dr Quesada
Rt side TIR, ilioinguinal neurectomy & vestibulectomy 5/09 Dr Conway
Left side TIR 2/10 Dr Conway
Potter MRI 9/10 and consultation w/Loretta & Dr Hibner 12/10
Bilateral ilioinguinal, iliohypogastric, genitofemoral release w/Dr. Hashemi Aug 2011 left & Sept rt
Bilateral TG surgery w/Dr. Conway will be in January 2012
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Re: Vaginal & rectal valium experiences?

Postby Princess Di » Sun Dec 12, 2010 12:57 am

Was diagnosed with vulvodynia in January 2010. Was then diagnosed with Pudendal Neuralgia in October 2010. I believe these are related even though my vulvodynia specialist says they aren't.(both are on the same side) I am currently using Diazapam 5 mg. in vaginal cream which I get from a compound pharmacy. I use .5 mg morning and night and it works wonderfully for me. It helps to calm my anxiety and help to control the aching in my vaginal area. It works really well for me right now, and I fell normal again. Still being carefull about sitting on my donut, and standing or lying down as much as possible.
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