side effect review link by patients

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.

side effect review link by patients

Postby sadie » Fri Jun 16, 2017 4:23 am

http://www.askapatient.com/viewrating.a ... ame=LYRICA

http://www.askapatient.com A friend, who is a member of this forum sent me the link above with LYRICA already filled in, so you may want to cut and paste it, if you are on Lyrica.

You just fill in the name of the medication you are on, and you should be able to read what side effects other patients are experiencing .

It also appears that the posts on this site are a little more current then most. I did not post it yet but.... I did notice a big change in my sight after taking Lyrica. I was 52 when I started taking Lyrica for PN and only wore cheaters ( drug store magnified reading glasses) and suddenly I had to wear prescriptions not just for reading but for distance. I have tried to titrate down from the 225mg I am on now, but the symptoms came back. I am very disconnected and have huge memory issues.

I do remember something that may help someone. I once had a mega sever headache that was so bad that I could not move my head on the pillow, sleep or eat. It lasted for 3 weeks until my dr ordered an MRI. I never had headaches and I was sure it was something horrible. The MRI tech said out of the blue.., "I was on Lyrica once and had the worse headache that I ever had ..." my jaw dropped , and I knew that was it!!! I only dropped down 25mg from 250mg a day, to 225mg a day and never had another headache. So dosing is important, you may just be taking to much...you don't always have to stop taking a drug completely due to side effects. Its all so individual, just like all of us.


thanks and blessings to the entire board and to Violet
2007-2010 anitriptyline for PN, 2010 it caused severe dystonia
2010 PNB w steroids caused severe PGAD
11-2010 St Josephs NH. , ketamine drip, meds etc to stop nerve from firing, nothing worked
11-2010 - 3-2011 Elliott Hosp. Pain Manag. Center , 16 PNB w/ lidocane did not work
3-2011 bilateral TG surg., w/ Dr. Conway
12-2011 3TMRI, Dr. Potter, rt side nerve re-entrapped w/ scar tissue
3-2013 rt side re-do surgery w/ Dr. Hibner for PGAD
sadie
 
Posts: 44
Joined: Sat Apr 23, 2011 7:50 pm

Re: side effect review link by patients

Postby mary jane » Sat Jun 17, 2017 12:05 pm

From what I've seen there are really few medications to treat nerve pain and I read somewhere it's getting increasingly difficult to come up with new meds which perform better than placebo in trials. Personally I just put up with the side effects unless they are life-threatening so I wouldn't want to start complaining about side effects, since even ibuprofen has horrible side effects.
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
mary jane
 
Posts: 119
Joined: Sun Nov 03, 2013 4:13 pm
Location: uk

Re: side effect review link by patients

Postby sadie » Sat Sep 16, 2017 7:57 am

Well i found another site that lets you ask questions about medications and their side effects...and wanted to share ... www.medschat.com .
This site will let you start a new 'approved' topic if you have one. I wanted to know how long after taking prescription benzos it takes to regain cognitive function . I did the medical research but wanted to know what the patients were saying. I realize all meds have side effects, but knowledge is power.

It took me two years to be able to problem solve and joke again . I saw the first glimmer of hope after the (year and a half mark). However, it would have been nice to know after the first year and a half that I still had hope to regain even more brain function ....as the research was telling me that it could take up to 18 months...and was not giving me much hope after that 18 month mark.

I hope to eventually find out if after taking lyrica if our memory and eye site will return :roll:
To all the HOPE travelers on this site God bless you all.
2007-2010 anitriptyline for PN, 2010 it caused severe dystonia
2010 PNB w steroids caused severe PGAD
11-2010 St Josephs NH. , ketamine drip, meds etc to stop nerve from firing, nothing worked
11-2010 - 3-2011 Elliott Hosp. Pain Manag. Center , 16 PNB w/ lidocane did not work
3-2011 bilateral TG surg., w/ Dr. Conway
12-2011 3TMRI, Dr. Potter, rt side nerve re-entrapped w/ scar tissue
3-2013 rt side re-do surgery w/ Dr. Hibner for PGAD
sadie
 
Posts: 44
Joined: Sat Apr 23, 2011 7:50 pm

Re: side effect review link by patients

Postby janetm2 » Sat Sep 16, 2017 8:22 pm

Hi Sadie,
That sounds like a good site. From my experience with Lyrica my memory came back after I got off of it. Not sure how long it took. Best to you.
Janet
2007-08 pelvic muscles spasms (per colon-rectal dr.) treated by ElectroGalvanicStimulis(EGS). 6/27/10 sat too long on a hard chair- spasms, EGS not work Botox help, spine pain dr cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain started/surgery at age 21. TG gave me back enough sitting to keep my job and join in some social activities. I wish the best to everyone!
janetm2
 
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Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland


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