The best e-mail address to give patients is : info@pelvicpain.org.uk and I
guess you're familiar with our website, http://www.pelvicpain.org.uk which is
highly praised by high profile people in the health sector including Sir
Prof Muir Gray who introduced the breast and cervical cancer screening
programmes to the NHS and is also responsible for the Information Standard
certification of patient information which we have got for our patient
information which includes pudendal neuralgia management and nerve blocks
for chronic pelvic pain. This informaiton is all recognized by NICE Evidence
and will be included on the NHS single information portal which is due to be
launched soon. Ours is the only organization in this field so patients will
be directed to us for information and support.
The message board on our website
called HealthUnlocked is monitored in London and by ourselves and is great
for asking and answering questions. There are many from other countries on
there too : USA, Australia, France etc and wer'e really pleased with how
well it's working.
Judy
getting help in the UK for pelvic pain
getting help in the UK for pelvic pain
Hey, I'm not sure if this information is available on this website. I got it recently from sending a few emails back and forth with Judy Birch from the UK. She is very active regarding getting help for people who have pelvic pain and she's a great person to be acquainted with in the UK. The organization she "works" for (she does everything voluntarily, actually) is called PPSN, which stands for Pelvic Pain Support Network.
Had surgery in Nantes, France in 2001 with Professor Robert. I advocate physical therapy with PTs who specialize in the pelvic floor. I also advocate injections to help diagnose PN and I am in favor of having PN surgery to release the nerve when the diagnoses points to an entrapped nerve.