Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Treatment options for UK & Irish members; including VHI & HSE criteria for funding and E112 Applications etc.

Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby Badger » Sun Nov 08, 2015 4:02 pm

Hi, I have had problems getting onto the page so I have had to name change. My name was originally 'Bertie'. Some of you have private messaged me and I haven't been able to respond hence the name change.

I have Violets permission to post this...I have set up a Facebook page (with two other ladies) for Pudendal Neuralgia pain for ladies and men who live in the UK. We have been going just over two months and it is proving very successful. It does not replace this page, obviously, but it does allow to discuss on UK time and we can discuss what specialists the UK has to offer.

If anyone is interested, please private message me as there are three who have contacted me as it would be great if you wanted to join. If anyone has emailed me to 'Bertie' then please email me again in case i didn't receive it. The group is secret so it's a very safe place for us to openly discuss anything we need too...:)
Badger
 
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Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby mod3 » Mon Nov 09, 2015 4:45 am

Bertie, I can help you figure out why your account isn't working if you want. Just email me at the admin@pudendalhope.org email address and we can sort it out from there if you want.

Please note, pudendalhope.org and the pudendalhope forum is not in any way associated with the Facebook site that Bertie has announced.

All the best,

Violet
mod3
 
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Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby Badger » Sat Dec 12, 2015 5:16 pm

Bungle I have a message notification from you but there is nothing there when I go to open it.
Badger
 
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Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby Dusty_in_Hope » Fri Dec 25, 2015 5:40 pm

Hi Badger/Bertie

I've just joined facebook in order to join the new pudendal nueralgia group and it's telling me it doesn't exist. Is the group still up and running, only I'd like to join :)

Thanks

Dusty
Dusty_in_Hope
 
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Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby Bungle » Wed Jan 06, 2016 3:58 pm

Hi Badger/Bertie

Sorry for the delay ... just seen your post to me! I was trying to pm you as I'd like to join the UK PN Facebook group, but the message I sent you in December is still in my outbox. Tried to re-send it to you today, but it's not working.

Can anyone help?

Thanks, Bungle x
Bungle
 
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Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby nyt » Thu Jan 07, 2016 1:24 pm

Bungle, if a message is still in your outbox the individual you sent it to has not read your message. It is removed from your outbox once they read your message.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
nyt
 
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Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby Bungle » Sun Jan 10, 2016 12:38 pm

Thanks nyt

I'm aware that the message will not reach the recipient if it's still in my outbox, but I can't get the message to send via this website's private messaging. Perhaps someone from admin may be able to help? Perhaps it's due to Bertie's name change to Badger. I will email the Moderators direct.

Thanks
Bungle
 
Posts: 5
Joined: Tue Apr 22, 2014 1:32 pm

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby Badger » Sun Jan 10, 2016 9:32 pm

Hi.......I just can't seem to reply to messages if you leave an email address in messages I will then contact those who want to join the group. I have also asked Alan a member on here to contact those who want to join that I am aware of. I don't know if it's because I use an iPad.
Badger
 
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Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby Bungle » Mon Jan 11, 2016 2:52 pm

Thanks Badger

I've just sent you an email to the address you provided ... got your private message today!

I too use an iPad, so maybe this is the issue.

Thanks, Bungle
Bungle
 
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Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Postby Anisha_d87 » Mon Feb 01, 2016 10:08 am

My messages are not getting through to you badger:(
I wanted to join the facebook group, ive sent you an email with my details
Anisha_d87
 
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