Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Treatment options for UK & Irish members; including VHI & HSE criteria for funding and E112 Applications etc.
Badger
Posts: 8
Joined: Sat Oct 24, 2015 7:16 pm

Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by Badger »

Hi, I have had problems getting onto the page so I have had to name change. My name was originally 'Bertie'. Some of you have private messaged me and I haven't been able to respond hence the name change.

I have Violets permission to post this...I have set up a Facebook page (with two other ladies) for Pudendal Neuralgia pain for ladies and men who live in the UK. We have been going just over two months and it is proving very successful. It does not replace this page, obviously, but it does allow to discuss on UK time and we can discuss what specialists the UK has to offer.

If anyone is interested, please private message me as there are three who have contacted me as it would be great if you wanted to join. If anyone has emailed me to 'Bertie' then please email me again in case i didn't receive it. The group is secret so it's a very safe place for us to openly discuss anything we need too...:)
mod3
Posts: 2260
Joined: Tue Aug 31, 2010 4:18 pm

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by mod3 »

Bertie, I can help you figure out why your account isn't working if you want. Just email me at the admin@pudendalhope.org email address and we can sort it out from there if you want.

Please note, pudendalhope.org and the pudendalhope forum is not in any way associated with the Facebook site that Bertie has announced.

All the best,

Violet
Badger
Posts: 8
Joined: Sat Oct 24, 2015 7:16 pm

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by Badger »

Bungle I have a message notification from you but there is nothing there when I go to open it.
Dusty_in_Hope
Posts: 119
Joined: Sat Jul 11, 2015 2:11 pm

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by Dusty_in_Hope »

Hi Badger/Bertie

I've just joined facebook in order to join the new pudendal nueralgia group and it's telling me it doesn't exist. Is the group still up and running, only I'd like to join :)

Thanks

Dusty
Bungle
Posts: 5
Joined: Tue Apr 22, 2014 1:32 pm

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by Bungle »

Hi Badger/Bertie

Sorry for the delay ... just seen your post to me! I was trying to pm you as I'd like to join the UK PN Facebook group, but the message I sent you in December is still in my outbox. Tried to re-send it to you today, but it's not working.

Can anyone help?

Thanks, Bungle x
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by nyt »

Bungle, if a message is still in your outbox the individual you sent it to has not read your message. It is removed from your outbox once they read your message.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Bungle
Posts: 5
Joined: Tue Apr 22, 2014 1:32 pm

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by Bungle »

Thanks nyt

I'm aware that the message will not reach the recipient if it's still in my outbox, but I can't get the message to send via this website's private messaging. Perhaps someone from admin may be able to help? Perhaps it's due to Bertie's name change to Badger. I will email the Moderators direct.

Thanks
Badger
Posts: 8
Joined: Sat Oct 24, 2015 7:16 pm

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by Badger »

Hi.......I just can't seem to reply to messages if you leave an email address in messages I will then contact those who want to join the group. I have also asked Alan a member on here to contact those who want to join that I am aware of. I don't know if it's because I use an iPad.
Bungle
Posts: 5
Joined: Tue Apr 22, 2014 1:32 pm

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by Bungle »

Thanks Badger

I've just sent you an email to the address you provided ... got your private message today!

I too use an iPad, so maybe this is the issue.

Thanks, Bungle
Anisha_d87
Posts: 6
Joined: Sun Jan 31, 2016 11:19 am

Re: Pudendal Neuralgia and Pelvic Pain UK Facebook Group

Post by Anisha_d87 »

My messages are not getting through to you badger:(
I wanted to join the facebook group, ive sent you an email with my details
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