Letter to the Medical Profession

This is where we will make important announcements, accept offers of helpful tips from members, and a place for questions and discussion regarding website and forum operations and procedures.
Our Code of Conduct is also viewable here.

Letter to the Medical Profession

Postby Mod8 » Fri Oct 08, 2010 8:17 am

The directors of HOPE have put together this letter for anyone who wishes to print it off and take to their health care specialists. Doctors, Nurses, Therapists etc. The more people we reach, the more we raise awareness of PN.
HOPE Letter to Medical Professionals.pdf
(78.01 KiB) Downloaded 263 times
HOPE letter to Medical Professionals Grey.pdf
(59.03 KiB) Downloaded 247 times


The document/letter that was originally posted was a word document file. It is now changed to a "read only" letter because the directors of HOPE are asking that it not be modified since it is on our official letterhead. We know that our great forum members would not modify it without our permission. Thank you.
Mod8
 
Posts: 693
Joined: Thu Sep 02, 2010 2:18 pm

Re: Letter to the Medical Profession

Postby Karyn » Fri Oct 08, 2010 4:04 pm

Thank you very much for making this valuable document available to all of us!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
User avatar
Karyn
 
Posts: 1668
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Letter to the Medical Profession

Postby TracyB7777 » Mon Oct 11, 2010 12:09 am

This is wonderful!! Thank you. I plan on taking it to my DO on Tuesday. He felt my pain was stress related and I just needed to learn to deal with it. ARGH!!! He's only still my DO because work is in the process of changing insurance and I need him to keep my meds current.
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
TracyB7777
 
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

Re: Letter to the Medical Profession

Postby Judith » Tue Oct 12, 2010 5:46 am

Great letter, thanks so much- I will share with all my practitioners.

Judith
Judith
 
Posts: 30
Joined: Sun Sep 19, 2010 5:34 am

Re: Letter to the Medical Profession

Postby Charlie » Thu Oct 14, 2010 3:53 am

Yes I agree. Thank you for making this document.
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
User avatar
Charlie
 
Posts: 229
Joined: Fri Sep 17, 2010 11:48 pm

Re: Letter to the Medical Profession

Postby mod3 » Thu Oct 28, 2010 2:17 am

The document/letter that was originally posted was a word document file. I have changed it to a "read only" letter because the directors of HOPE are asking that it not be modified since it is on our official letterhead. We know that our great forum members would not modify it without our permission. Thank you.

I also added a grey version if anyone wants to save color ink.

Mod3
mod3
 
Posts: 1994
Joined: Tue Aug 31, 2010 4:18 pm

Re: Letter to the Medical Profession

Postby kat » Thu Oct 28, 2010 6:24 pm

The version of the letter you created first is the one I modified and have been distributing to my docs and medical practitioners.
It has led to discussions of PN and PNE with those who have never heard of this condition so it is very helpful as a conversation starter.
It does not have you letterhead so I feel there should be no issue with getting the word out anyway we can.

If you prefer I put the letterhead on the version I modified, I am more than willing to do that.
Let me know what you are most comfortable with.

Keep up the good work spreading awareness of this medical condition.

Kathy
Born with pudendal and obtorator neuralgia. 32 years of being misdiagnosed.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.
kat
 
Posts: 204
Joined: Fri Sep 17, 2010 3:44 pm

Re: Letter to the Medical Profession

Postby Karyn » Thu Oct 28, 2010 6:51 pm

Thanks for the grey version, Mod3! Great idea about making it a "read only", too!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
User avatar
Karyn
 
Posts: 1668
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Letter to the Medical Profession

Postby mod3 » Fri Oct 29, 2010 5:45 am

Kathy, it's awesome that you are getting the word out. We are just asking people that if they are distributing the letter in the name of the organization using the letterhead that it please not be modified. If you've already distributed it -- hey, no worries. ;) Thanks for getting the word out.

Mod3
mod3
 
Posts: 1994
Joined: Tue Aug 31, 2010 4:18 pm

Re: Letter to the Medical Profession

Postby Mod8 » Fri Oct 29, 2010 8:33 am

thank you Mod3 for fixing this.
Mod8
 
Posts: 693
Joined: Thu Sep 02, 2010 2:18 pm

Next

Return to ANNOUNCEMENTS & COMMUNITY

Who is online

Users browsing this forum: No registered users and 1 guest

cron