International Pelvic Pain Society meeting in Chicago

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International Pelvic Pain Society meeting in Chicago

Postby A's Mommy » Fri Oct 22, 2010 3:59 am

Hello all!!

Check out the schedule for the annual IPPS meeting in Chicago, IL!
Some of our PNE physicians and PTs are presenting.

www.pelvicpain.org

I'm sure the ones that may not be presenting are certainly attending!

Some noteworthy speakers include:

Michael Hibner, MD, PhD
Richard Marvel, MD
Stephanie Prendegast, PT
Rhonda Kotarinos, PT
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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Re: International Pelvic Pain Society meeting in Chicago

Postby HerMajesty » Fri Oct 22, 2010 12:49 pm

ugh! I just sent that to Jerry under the email heading, "look what we missed..." We gotta join that IPPS, durn it!
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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Re: International Pelvic Pain Society meeting in Chicago

Postby Karyn » Fri Oct 22, 2010 1:22 pm

Oh, you found it! So this is where Dr. Conway is! This is awesome, A's Mommy! Thanks so much for posting the link.
Hugs and love,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Re: International Pelvic Pain Society meeting in Chicago

Postby A's Mommy » Fri Oct 22, 2010 1:57 pm

Well, I ended up "thinking" there HAD to be some type of pelvic pain meeting going on in the US because Dr. Hibner is out of town, then someone else posted Dr. Conway was also out of town and I spoke to Loretta and she said she would see Hibner this weekend so then I just put it all together and happened to check the pelvic pain website and realized, well HEY, THEY ARE ALL CONVERGING THERE! I'm praying that awesome things come out of this meeting. I wish they would do a webcast of their presentations with slides like that recent one done in Toronto (late August) with Beco, Antolak, Weiss, et al.

<3 ya,

A's Mommy
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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A's Mommy
 
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Re: International Pelvic Pain Society meeting in Chicago

Postby HerMajesty » Fri Oct 22, 2010 2:03 pm

We're doing the 7th Interdisciplinary World Congress on Low Back and Pelvic Pain Nov 9-12, but I am not sure if the big name Docs for PN will be there as we have been pre-connecting with the people in the biomechanical fields; anyhow here is the website in case somebody wants to checka nd see if they are all going there too, guess I am too lazy to ferret it out myself:
http://www.worldcongresslbp.com/
Anyhow it is reassuring that so many of these things are going on!
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
HerMajesty
 
Posts: 1151
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: International Pelvic Pain Society meeting in Chicago

Postby Amanda » Fri Oct 22, 2010 4:43 pm

There is certainly an impressive lineup of recognised Pelvic Pain Doctors at this meeting in Chicago.
Lets hope that the abstracts of their findings will be available soon for all to read.
Here is a link to the programme of events:http://www.pelvicpain.org/meetings/2010/schedule.aspx
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
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Re: International Pelvic Pain Society meeting in Chicago

Postby kat » Sun Oct 24, 2010 8:33 pm

So can this site register for the International Pelvic Pain Society?

Does anyone on this site belong to it?

Do any of you recommend joining a Pelvic Pain Society?

I hope my issues are resolved, but part of me wants to be up to date on the new info coming out that may help people like us to live more normal lives.

Thanks for you opinions and suggestions.

Kathy
Born with pudendal and obtorator neuralgia. 32 years of being misdiagnosed.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.
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Re: International Pelvic Pain Society meeting in Chicago

Postby Cora » Tue Oct 26, 2010 11:31 am

Ya, I know my Pt was there too. Sherese Hildenbrand so I hope to get her take on the conference. I'm particularly interested in the discussions on the central nervous system stuff, but all of it of course. If I talk to her soon, I'll try to summarize.

Cora
[color=#8040BF]Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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Re: International Pelvic Pain Society meeting in Chicago

Postby Violet M » Tue Oct 26, 2010 10:03 pm

Kathy, it would be great if someone from the site could register as a member and attend -- it's a bit pricey though. But if we can get our PT's to report back as Cora said, that would be great!
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: International Pelvic Pain Society meeting in Chicago

Postby Cora » Mon Nov 08, 2010 8:16 am

I see Sherese next week and I'll ask her about the meeting and give a full report. Stay tuned. 8-)
Cora
[color=#8040BF]Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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