could it really be true ?I

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could it really be true ?I

Postby river133 » Wed Jan 16, 2013 1:48 am

could it really be true ? The past month or so I have been able to sit a bit longer, At first I thought it was some fluke , 5 years of pain, afraid to really believe it was real but I do think it is beginning to happen. pudendal still quite painful although not as . Must be from surgery with Dr.Antalok'. , or maybe even Dr Chambi'. Oh dear God let it continue. Just keep hoping. :D :D
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
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Re: could it really be true ?I

Postby helenlegs 11 » Wed Jan 16, 2013 2:27 pm

Thank goodness Ellie :D . It just goes to show how long recovery can take to see improvements, and of course your never give up attitude must help.
Take care,
Helen x
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Re: could it really be true ?I

Postby Karyn » Wed Jan 16, 2013 3:14 pm

Hi Ellie,
I'm so glad to hear you're able to sit longer, and more comfortably! :D
Helen is right. Nerve surgeries are different than other types in that recovery takes so much longer. For most of us, there's no immediate pain relief. I consider it a good sign that you're having some consistency with your sitting. Keep up that positive attitude of yours! You're heading in the right direction.
Hugs,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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