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Facebook

Postby carolynm » Tue Apr 09, 2013 11:17 pm

For our new members please be aware of the Facebook closed support groups that are available. People are on it 24/7 so instant feedback is possible. It has saved my life many times over when I had a cry for help and emotional support.

Cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
carolynm
 
Posts: 465
Joined: Fri Jul 22, 2011 4:25 am
Location: CO

Re: Facebook

Postby Anne smith » Tue Apr 30, 2013 11:06 am

Hi carolynn
I am interested in joining a face book site, and after reading your post I believe your familiar with them, but there are so many I wonder if you could recommend one?
Many thanks
Anne smith
Iliostomys at twenty five, just after delivery of baby
Started with rectal pain about twenty one years later
Ten years to get diagnosis, had to research myself!
Two horrific surjurys two(mend) a perennial hernia
Now with mr baranofskis team and traveling to London shortly for injections into alcocks.
Anne smith
 
Posts: 72
Joined: Wed Feb 08, 2012 12:44 pm

Re: Facebook

Postby lightmail » Wed May 01, 2013 6:54 am

PUDENDAL NEURALGIA HOPE
lightmail
 
Posts: 91
Joined: Mon Sep 12, 2011 6:19 am

Re: Facebook

Postby Anne smith » Wed May 01, 2013 1:28 pm

Thanks light mail
Found the various e groups! But unsure if I've been acsepted( I haven't been asked for name or passwords, keep pressing on join, but all I'm getting is a list of members, that when I tap on(to get an idea of the kind of things discussed ) nothing comes up but the basic format! I must keep trying!
Many thanks anne
Iliostomys at twenty five, just after delivery of baby
Started with rectal pain about twenty one years later
Ten years to get diagnosis, had to research myself!
Two horrific surjurys two(mend) a perennial hernia
Now with mr baranofskis team and traveling to London shortly for injections into alcocks.
Anne smith
 
Posts: 72
Joined: Wed Feb 08, 2012 12:44 pm

Re: Facebook

Postby lightmail » Wed May 01, 2013 11:42 pm

I see you were accepted Anne. It should pop up on left side, click on that.
lightmail
 
Posts: 91
Joined: Mon Sep 12, 2011 6:19 am

Re: Facebook

Postby Anne smith » Thu May 02, 2013 10:21 pm

Thanks light mail!
I know it's selfish! But it is so lovely to get this support!
Many thanks
Anne smith
Iliostomys at twenty five, just after delivery of baby
Started with rectal pain about twenty one years later
Ten years to get diagnosis, had to research myself!
Two horrific surjurys two(mend) a perennial hernia
Now with mr baranofskis team and traveling to London shortly for injections into alcocks.
Anne smith
 
Posts: 72
Joined: Wed Feb 08, 2012 12:44 pm


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