support group?

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support group?

Postby niki » Mon Apr 29, 2013 2:09 am

Does anyone know of any support group in the san diego area? I just finished reading Gilda Radners book and the thing that I most took away was the relief she got by being in a support group. Talking and hearing about people going through simiar experiences helped her not only face her problems, but sometimes would offer help from an unlikely source. I keep getting mired. Most days still angry, but then wanting to move on, but not being able to adjust my lifestyle accordingly. The days that I feel better I resort to the "old me", and then do too much, and retreat to a tens unit, pills or sleep. I have tried lots of psychotherapy, but since most of the time the doctors are unfamiliar with this affliction, they spend their time trying to fit me into a box.

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Joined: Mon Sep 19, 2011 10:39 pm

Re: support group?

Postby Rosemary » Mon Apr 29, 2013 11:39 am

Hi Niki

Have you read Her Majesty's idea about breaking your own patient confidentiality in order to find someone else locally in a similar situation.

I asked the physcologist i am seeing if she had a similar patient to me - her answer was no so i am going to ask at my next pain management appointment. They won't be able to direct me to anyone because of that persons confidentiality but if i break my confidentiality someone may come to me - it is worth a try.i think this is what Her Majesty meant.

Rosemary x
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Re: support group?

Postby knitwit » Mon Apr 29, 2013 2:26 pm

Gilda's book is one of the best books I have ever read. There is no doubt if some of us could sit with each other face to face, would be wonderful. But for some of us
just getting out of bed and making a Dr's appt. is a huge task! I am thankful for this board, and the many friends I have made here, in the U.S. and overseas. I don't know
what I would do without them. But, I agree, it would be great to be able to get to such a meeting! It would be worth all the pain meds I would have to take to get there! :D :D
knitting keeps me sane!
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Joined: Sat Oct 01, 2011 3:49 pm

Re: support group?

Postby janetm2 » Mon Apr 29, 2013 7:32 pm

FYImy PT group is starting some thinfs such asasking if I would talk to someone that was suggested to surgery and then they put up a signup for support groups. Definitely impotant I miss my chronic pain buddy - my brother that died in Nov but havenot found a replacementt. Thoses here are great!
2007-08 pelvic muscles spasms (per colon-rectal dr.) treated by ElectroGalvanicStimulis(EGS). 6/27/10 sat too long on a hard chair- spasms, EGS not work Botox help, spine pain dr cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain started/surgery at age 21. TG gave me back enough sitting to keep my job and join in some social activities. I wish the best to everyone!
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Location: Maryland

Re: support group?

Postby rugby » Tue Nov 05, 2013 5:17 pm

Hi Niki,
I am in Temecula. Would love to talk.
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Joined: Tue Oct 22, 2013 3:42 pm


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