1st World Congress on Abdominal and Pelvic Pain

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1st World Congress on Abdominal and Pelvic Pain

Postby helenlegs 11 » Mon Jun 03, 2013 6:00 am

The 1 st World Congress for abdominal and pelvic pain has just taken place in Amsterdam. Here is a link to the web page http://www.pelvicpain-meeting.com/
I'm not sure if there will be any more details from the Congress, there's not a great deal to see at the moment, although what is there is very encouraging.
Take a look at the interviews with Dr Baranowski and Bert Messelink (Congress organiser) and also an interview with Sally Crowe a http://my.incrowdapp.net/e/1st-World-Co ... elvic-Pain which is interesting. Hopefully we will have some access to her forthcoming report re the Congress.

Here is the itinery or scientific programme showing a few names known to us and probably a few more.
http://www.pelvicpain-meeting.com/scien ... no_cache=1

You can see that Dr Greenslade (Bristol) made a presentation, as Did Dr Baranowski, and Dr Natasha Curren. Dr John Hughes from Middlesbrough (UK) co author of The Guide to Chronic Pelvic Pain 2012 (linked on our home page) was also very involved.
Mr/Dr? Khalid Khan has also been very involved with the outlay of pelvic pain pathway for the NHS in the UK
Stephanie Prendergast (US) presented The external expression of abdomino-pelvic pain - referred soft tissue phenomena. I'm sure she will blog about it soon.
And Dr Fred Howard (US) presented What should a qualification in abdomino-pelvic pain management be based on?




Judy Birch from the pelvic pain organisation UK was there and did a presentation with Francoise Watel a French patient ( I think ) about The role of the patient organisations, from local to worldwide Hopefully I will be able to get feed back from Judy about the whole Congress in general.
The main focus does seem to be about US! The patient :)

This is one of my favourite bits, a Tweet from Erich Taubert


erich taubert @thetaub
#wcapp2013 Try really listening to your patient may give clues to what the patient really want. Try to shut up for 60 seconds! Try it.......
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Re: 1st World Congress on Abdominal and Pelvic Pain

Postby Rosemary » Mon Jun 03, 2013 10:54 am

Thank you for posting this Helen wouldn't know about these things otherwise.

Just emotional me but i am here blubbering that other people take their time to try to make things better for us.

Rosemary x
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Re: 1st World Congress on Abdominal and Pelvic Pain

Postby helenlegs 11 » Mon Jun 03, 2013 12:22 pm

Oh Rosemary!!! :cry: Although I know exactly how you are feeling.
When I made my very short 'presentation' to the assembled at Southampton recently I didn't get to finish all I wanted to say, as I began to get a definite catch in my voice because all of these rather important people were staring at me so intently and actually listening to what I had to say. . . . . after 5 years of batting my head against a brick wall it seemed surreal and too wonderful.
Judy asked if she could use some of it for the presentation in Amsterdam :oops: so I wish I had made a better go of it. I should probably have organised my hair and makeup better too dahhlink ;) Although on reflection, it is probably better looking like a pile of, when being a patient :)
Things are definitely set to change. Our GP's and other clinicians will not be able to ignore us or think we don't exist for much longer.
Hugs,

Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Re: 1st World Congress on Abdominal and Pelvic Pain

Postby janetm2 » Mon Jun 03, 2013 7:43 pm

Helen,
Thanks for keeping us in the loop and I love the tweet!
Janet
2007-08 pelvic muscles spasms (per colon-rectal dr.) treated by ElectroGalvanicStimulis(EGS). 6/27/10 sat too long on a hard chair- spasms, EGS not work Botox help, spine pain dr cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain started/surgery at age 21. TG gave me back enough sitting to keep my job and join in some social activities. I wish the best to everyone!
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Re: 1st World Congress on Abdominal and Pelvic Pain

Postby Rosemary » Tue Jun 04, 2013 12:03 pm

helenlegs 11 wrote:Things are definitely set to change.


Helen

When things do change you will have been instrumental in part of it - thanks so much.

Rosemary x
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Re: 1st World Congress on Abdominal and Pelvic Pain

Postby Violet M » Wed Jun 05, 2013 9:16 pm

Very interesting. Thanks, Helen. ;)
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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