Help? Pudendal nerve physio therapy?

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Help? Pudendal nerve physio therapy?

Postby Positivepoppy » Tue Mar 04, 2014 7:06 pm

Hi
Please could anyone recommend or advise me if physio therapy can be effective when recovering from bilateral pudendal nerve decompression surgery? I had the surgery 7/8 weeks ago in Bristol and feel a bit helpless I am not doing more. I know that this condition can take years to recover from just hoping there may be additional help that could be effective. Please could anyone post some names I live in south Wales.
Huge advance thanks for any replies
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Re: Help? Pudendal nerve physio therapy?

Postby Violet M » Wed Mar 05, 2014 6:22 am

Hi Poppy,

Personally I would opt for rest and pain relief but others may have a different opinion. I didn't start PT until almost a year after surgery because the thought was just too painful.

Sorry, I don't know PT's in your area but hopefully someone from the UK can help you with that.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Help? Pudendal nerve physio therapy?

Postby Positivepoppy » Wed Mar 05, 2014 10:46 am

Hi thanks for advice, to be truthful it is too painful just feel helpless and desperate for life back and to return to my much loved job. I'm walking for 20 mins daily and have attempted some hydrotherapy just using a float in pool. Hope you are ok thanks for your response
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Re: Help? Pudendal nerve physio therapy?

Postby calluna » Thu Mar 06, 2014 10:04 pm

Hi Poppy, you are not too far away from me in Wiltshire actually. I had surgery at Frenchay in Sept 2011 and then a bit more in July 2012. I haven't had any physio at all and I have no personal knowledge of any PN aware physios in the UK, apart from a chap in Edinburgh who is well spoken of. It is a desert....

I would absolutely agree with Violet, you are only a few weeks post surgery and it is really so crucially important not to overdo things. Rest, pain relief, and gentle exercise, in an appropriate balance, avoiding anything that causes pain.

And actually I can't think of anything better than walking to rebuild your strength after surgery. Please don't rush though. I remember vividly just how it all felt at 8 weeks post-op.
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Re: Help? Pudendal nerve physio therapy?

Postby Positivepoppy » Thu Mar 06, 2014 11:57 pm

Thanks for your response and hope you are improving and getting your life back. I spoke to mr Wong the surgeon today and he said the same thing and seemed to encourage gentle walking and swimming but no more as still early days. Not sure I could stand physio at the moment just want my life back. Take care and thanks
Positivepoppy
 
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Re: Help? Pudendal nerve physio therapy?

Postby Violet M » Fri Mar 07, 2014 5:58 am

Poppy, I think it is so important not to overdo things. I walked around the house the first 5 months post-op an then at 5 months started walking outside on level ground 5 minutes a day and slowly increased it to where I can now walk 2-3 miles including up and down hill if it's not real steep. My thoughts are that a good rule of thumb is...don't do anything that increases your pain levels.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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