Ribbon Campaign

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Ribbon Campaign

Postby MovinCA » Thu Aug 28, 2014 8:39 pm

Hi Everyone,

I haven't been on in awhile, but I am starting a ribbon campaign. I am collecting information from individuals with PN and/or PNE, and will send the results to the HOPE board, as well as the leaders of the Pudendal Neuralgia Association.

Please take some time to complete this survey! Share your opinion on how our awareness ribbon should look!
https://www.surveymonkey.com/s/8CK5LGC

Thank you!
Fell on tailbone at the age of 10 (about 24 years ago) and sat differently ever since.
Diagnosed with PN in 2006.
Successfully manage symptoms and pain with physical therapy.
Experience painful flares periodically, often brought on by long car rides.
Successfully made it through pregnancy in 2012 and love being a mom!
Blog: http://walking4hopepn.blogspot.com
Donation Page (Fundraising Money Goes to HOPE): http://www.razoo.com/story/Walking4hopepn?referral_code=share
Twitter: @walking4hopepn
User avatar
MovinCA
 
Posts: 21
Joined: Sun Oct 16, 2011 9:26 pm
Location: California

Re: Ribbon Campaign

Postby MovinCA » Thu Aug 28, 2014 11:16 pm

I just realized that I wrote that I am starting this campaign. It is definitely not just me. Someone else brought it up recently. I'm just getting us started on a unified front. Please take some time to take the survey. We want the design of the ribbon to represent us all in the best way possible, and your feedback is crucial!
Fell on tailbone at the age of 10 (about 24 years ago) and sat differently ever since.
Diagnosed with PN in 2006.
Successfully manage symptoms and pain with physical therapy.
Experience painful flares periodically, often brought on by long car rides.
Successfully made it through pregnancy in 2012 and love being a mom!
Blog: http://walking4hopepn.blogspot.com
Donation Page (Fundraising Money Goes to HOPE): http://www.razoo.com/story/Walking4hopepn?referral_code=share
Twitter: @walking4hopepn
User avatar
MovinCA
 
Posts: 21
Joined: Sun Oct 16, 2011 9:26 pm
Location: California


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