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Breast cancer hormones

PostPosted: Tue May 23, 2017 12:37 pm
by bongosis

I am posting this on behalf of my mum who suffered for years with pudendal nerve neuralgia. The symptoms eased when she got put on HRT for her menopause however, she recently got diagnosed with breast cancer and has started hormone treatment for the next 5-8 years and because this treatment supresses oestrogen (as I understand it , the hormone that is causing her cancer to grow) her pudendal nerve neuralgia has come back with a vengeance. She is in agony and does not know what to do. Her doctor said she must just put up with the pain because she needs these hormones to stop the cancer from coming back.
Anyone go through anything similar or know of a possible treatment to ease her pain. She is considering taking her chances at having cancer again rather than living in this pain. I should probably also mention, we live in Switzerland and I don't think they know as much about PN as they do in the UK or the US.

Thanks for your help.

Re: Breast cancer hormones

PostPosted: Wed May 24, 2017 6:00 am
by Violet M
That is a really difficult position to be in. There are other options your mom could try -- like neurostimulation or an intrathecal pain pump if she doesn't want to take oral opioids. I don't think she should have to put up with the pain. Has your mom seen any of the Swiss doctors listed at the following link?


Re: Breast cancer hormones

PostPosted: Wed May 24, 2017 8:36 am
by Amy01
Hi bongosis, welcome to the forum. Really sorry to hear of your mom, i am not an expert on this subject but hope you get some good advice from other group members. Surely UK has convenient and better options for PN.

Re: Breast cancer hormones

PostPosted: Fri Nov 24, 2017 10:41 am
by Cherry
Very touching story