Botox

Botox options, which Doctors use this form of treatment and techniques offered.

Botox

Postby ataraschimmel » Thu May 12, 2011 8:11 pm

I wanted to share my experience with Botox. After about 9 months of physical therapy and many sessions of internal trigget point injections my doctors and physical therapists decided that it was time for me to try Botox. My pelvic floor was pretty normal but I was still suffering from disabling nerve pain. I went into the procedure rather innocently as I was told that i did not have much to worry about in terms of side effects. I was not told that a possible side effect was a severe and permanent increase in pain. The Botox was a horrific set-back that left me either bed-ridden or rocking my body on the floor. I was devastated and completely crushed. Whatever relief and progress that had been made with the help of physical therapy and trigger point injections was completely erased.
I wonder if there are others here that have experienced similar adverse effects with Botox. Please share with me your stories as I am still trying to make sense of mine.
please become a follower of my blog
feel free to comment and to share your thoughts with me
http://pudendalneuralgia-atara.blogspot.com/.

almost 37 years in this world, the last few years have been my merciless introduction to hell,
i take 100mg lyrica x 3, 120mg cymbalta, nerve blocks with dr.volovska
will self-medicate with marijuana when i can get my hands on some
am always in pain
if anyone has discovered the why? behind all this suffering please fill me in
thank you all for this forum
ataraschimmel
 
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Re: Botox

Postby Lernica » Thu May 12, 2011 9:30 pm

Dear AS,

I'm really sorry to hear about your experience with botox. I think that many health practitioners often understate the risks of medical procedures, saying things like ". . . one in a million chance it would happen to you. . . .". I don't think they really have any idea how risky some of the procedures are, since many patients simply don't return instead of complaining.

I haven't had any experience with botox so I can't give you any words of wisdom about it. But I'm really feeling your pain and sending you warm healing thoughts. Hopefully you will feel better once the botox wears off.

Thank you for posting your experience so that the rest of us may learn from it.

Warm regards,

Lernica
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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Re: Botox

Postby merrie » Fri Jul 08, 2011 4:46 pm

I am so sorry for your experience. It sounds horrible. How experienced was the dr who gave you the botox injections with doing them in the pelvic floor muscles? I think dr experience cannot be overrated with this.

For me botox helps me tremendously although as soon as it wears off after 4-5 mos my full on symptoms recur. So it is only a temporary fix in my experience. The main side effects I have had is nausea, flu like symptoms and very bad stomach upset for about 2 weeks.

Merrie
PNE onset 9/2008
Weekly pelvic floor PT since 9/2008
Numerous nerve blocks 2008 - current (pn, s2-s4 epidurals, pelvic/lumbar/splanchnic sympathetic)
PRF s2,3,4 May 2009
Numerous hip injections and trigger point injections
Numerous rounds of botox (first 12/08 - most recent 5/13)
Hibner consult / Kalinkin MRI 11/10
PT with PHRC in May 2013
merrie
 
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Re: Botox

Postby tigerlily1 » Tue Oct 04, 2011 12:35 am

I attend a doctor here in Northern Ireland who at the moment is treating me with botox injections after lots of other treatments have failed to relieve my pain. Botox injections worked for five years but the last two years (yearly injections) have not been successful. I have been having horrendous pain for nine years following a labiaplasty (completely unneccessary, just a whim on my part) on my left side. My whole life from the day I had this done has changed completely. I am in constant agony and am so depressed and tearful all the time. No doctor has diagnosed me with anything, they cant understand why I am in such pain following a simple labiaplasty. I have so many symtoms like urgency to use the loo with intense stinging and burning, numbness, stabbing and increased sensitivity, so much so that underwear is almost impossible to wear as all my pain centres in my left side of my vulva. I have now developed bowel problems to boot, just to mention a few. Everything was fine until I had my labiaplasty and as soon as I opened my eyes after the surgery I was in complete agony and have been so every since.

I am now trying pregabalin and amitripiline again and yet again as yet with no success. I am so desperate for an end to my pain as it is so completely disabilitating. I had to give up working and my enjoyment of life has disappeared and fear for my marriage as this puts a terribly strain on our relationship.
I would welcome any suggestions from anyone as to what they think I might have or what I can do.
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Re: Botox

Postby Lernica » Tue Oct 04, 2011 3:22 am

Tigerlily,

It sounds like classic PN symptoms that you are describing. You have found the right place. Keep reading the material you find on this website and you will start to get some ideas as to how to get better. Welcome to the forum, where you are among friends.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Lernica
 
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Re: Botox

Postby helenlegs 11 » Tue Oct 04, 2011 7:22 am

Have to agree with Lernica (and Violet on other post)
Welcome Tigerlily. You will find the home pages very informative. Maybe print the symptoms page and/or letter to medical professionals out to take to your doctor. Might help them solve your puzzle too.
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Re: Botox

Postby knitwit » Wed Oct 05, 2011 8:16 pm

I must say that I had a terrible side effect as well. Only mine was severe and persistent nausea. It was terrible. I had 2 separate injections. The first time I had a low dose. (I cannot remember the exact dosage). 3 days later I noticed I was slightly nauseous. Both the doctor and I decided it was possibly incidental....as nausea is a rare side effect... I tried it again because I felt the botox did help my pain. We decided to double the dose. Big mistake. I lost 13 pounds over a 2 month period. It was terrible. Please be aware - google botox. Things can go wrong. I am better now, but it was not a good experience for me. Just thought I would share my 2 cents.
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Re: Botox

Postby Vinarski12 » Thu Oct 16, 2014 7:54 am

i am really sorry about your experience.
I also have a bad experience too. I have been getting 200 units of botox injections in my neck every 3 to 4 months for Cervical Dystonia.
I am 62 years old male with no health issues other than a neck injury. I eat very good and am in very good shape. I have no family history of thyroid problems.
I am very concerned that the botox has effected my thyroid. The Dr. treating me says you can read anything on the web but that does not change how I think. I thought this before reading anything.
Just wanted to put this out there.
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Re: Botox

Postby BrentElmer » Fri Nov 14, 2014 12:29 pm

really feeling sorry for you. that's really sad. and thanks for sharing your experience
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Re: Botox

Postby deviswolowitz » Tue Jan 05, 2016 9:19 am

Botox is a drug made from a toxin produced by the bacterium Clostridium botulinum. It's the same toxin that causes a life-threatening type of food poisoning called botulism. Doctors use it in small doses to treat health problems, including

Temporary smoothing of facial wrinkles and improving your appearance
Severe underarm sweating
Cervical dystonia - a neurological disorder that causes severe neck and shoulder muscle contractions
Blepharospasm - uncontrollable blinking
Strabismus - misaligned eyes
Chronic migraine
Overactive bladder
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