Sharing to the public... How I overcame chronic PNE

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Sharing to the public... How I overcame chronic PNE

Postby Pudendal Survivor » Wed Jul 27, 2016 5:50 pm

I'm getting chills now as I am typing. My pudendal nerve entrapment injury happened in the summer of 2007, and after 8 years of experiencing every type of extreme genital-area pain (that I'm sure many of you who are reading are familiar with), I have now been pain and symptom free for 6 months.

Today it dawned on me that I should share my story in the chance that it might help a fellow human being out there who is facing a similar hellish situation.

2007... I was a happy, active 36 year old man, rock climbing, biking, swimming, running. At a bouldering gym I fell about 15 feet straight down onto my bottom, and I felt a warm tingling sensation up my spine, but no pain. Soon thereafter I felt okay, and recklessly I continued climbing... then while doing a high step bouldering problem (where your feet are above most of your body) I felt something like a cattle-prod being stuck underneath my testicles.

A few painful and confusing months later I was finally diagnosed with pudendal nerve entrapment by a pelvic floor specialist.

Some of the pain symptoms:

Dull,or sharp, stabbing pain in the perineum area whenever I would sit for longer than 5-10 minutes
Pain while urinating (sometimes excruciating)
Pain with anything sex related
Pain if I stretched in particular ways.

I gave up bike riding, climbing, motorcycle riding, even running... it felt like almost everything was painful.
I was borderline suicidal at times, and I spent thousands of dollars and tried maybe four dozen therapies trying desperately to get my life back.

I am no doctor, but here are the remedies/therapies for your consideration that worked best for me (and most of them are free thankfully :D )

••Fascia rolling around the area, as well as the coccyx, once every other day
••Gentle personal massage for about 1 minute, every other day, paying close attention to how my body would respond to different massages, I would also use a pain relieving cream while doing it, Topricin (nerve relief) worked really well for me
••Inversion table a few times a week
••Gentle daily exercise that doesn't exacerbate the condition (walking graduating into light jogging was great for me)
••Gentle Stretching (figuring out what stretches help, what hurts, what's needed even if it's uncomfortable)... there's something called the "Pudendal Slide" that really helped me: I would lay on my back with legs straight, gently bring one knee up with foot still on the ground, bring knee gently to the side (left if left knee, right if right knee), bring knee back up, then gently straighten leg... then repeat with other side, 3 reps once daily I would do.
**NET (neuro emotional technique... it worked wonders for me, you can do your own research :) )

Thanks for reading, I feel like I'm about to cry... my full heart goes out to anyone wrestling with this crazy injury.
Everyone has their own journey, but to whoever happens to be reading this... YOU CAN DO IT.
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Re: Sharing to the public... How I overcame chronic PNE

Postby lightmail » Thu Jul 28, 2016 7:57 am

Glad you are doing so well. I don't understand your directions for the pudendal slide. Can you explain it a little better. Thank you..Robert
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Re: Sharing to the public... How I overcame chronic PNE

Postby Pudendal Survivor » Thu Jul 28, 2016 11:18 pm

lightmail wrote:Glad you are doing so well. I don't understand your directions for the pudendal slide. Can you explain it a little better. Thank you..Robert


Thank you Robert! Okay, let's see if I can detail the 'Pudendal Slide' better...

So this is a really gentle exercise that was subtle but it helped out a lot, there shouldn't be any strain or overextension

So you start by laying flat on your back, legs flat and straight on the ground (like the yoga position 'corpse pose')
Bring left knee slowly up, with the left foot sliding towards you on the ground until it is close to the buttocks, just go as far as is comfortable
Gently let your left leg/knee go to the left side away from your body while keeping your left foot on the ground (the foot will pivot so that the left side of your foot will on the ground.) You can support your left leg/knee with your left hand as well, bringing it to a gentle resting position. If you're not super flexible like myself, my knee never got to the ground all the way, it just hovered a few inches off the ground, but if if my hips were more flexible the legs would be making a backwards capitol "L".
Let your body rest there for a few seconds, then reverse the whole process. Bring your left leg/knee back up, then slide your foot back out away from you so you're back into just lying flat on your back ('corpse pose')
Repeat the whole process for the right leg/knee.

This is all done slowly and gently, especially the first few weeks of doing it.
I would repeat the process for a total of 3 times for each side.

I'd usually do this once a day... personally my body felt better with doing it later in the day as opposed to the morning, but this is all up to you.

Best of luck to you sir!

mike
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Re: Sharing to the public... How I overcame chronic PNE

Postby Violet M » Fri Jul 29, 2016 4:40 am

Glad to hear you are doing so well, Mike! Did you go to your PT every other day for the fascia rolling? This isn't something you can do yourself is it?

The gliding exercises sound the same as the ones posted on our website. http://www.pudendalhope.info/node/46#GlidingExercises

I think Dr. Antolak used to recommend them.

Thanks,

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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