Staged sacral reflex, pudendal ultrasounds

PNMLT, EMG, SSEP, and other Nerve function testing.
The different techniques, results and opinions.

Re: Staged sacral reflex, pudendal ultrasounds

Postby Gabriel81 » Thu Feb 16, 2017 7:58 pm

Hi Violet, I remember in some post that, generally speaking, you talked about TG approach more indicated in male then TIR and TIR more indicated when there is a pelvis misalignment (sorry if I report something wrong). I'm male and have misalignment...(legs dismetria, scoliosis, ecc...). What a difficult life! :(
2004 Urethral burnings, chronic prostatitis diagnosis, unuseful drugs. Lately added chronic pelvic contracture.
2011 Pudendal Neuralgia diagnosis, nerve blocks and oral drugs.
2013 Two neuromodulation surgeries.
2016 Possover negate Pudendal Neuralgia (no pain elicited on rectal exploration), says problem is more central but MRI- neurography show nothing.
2017 De Bisshop found Oedema/hyperpressure and neurological abnormal response on intrapiriform area, most on sx.
Failed injection blocks.
Gabriel81
 
Posts: 33
Joined: Mon May 02, 2016 5:03 pm
Location: Siracusa, Italy

Re: Staged sacral reflex, pudendal ultrasounds

Postby nonsequitur » Fri Feb 17, 2017 3:29 am

gabriel,

I just read your first post. You had many failed nerve blocks. According to the Nantes criteria, you are not a candidate for surgery. Don't do it.
You also say that you have IBS. Do you think it is related to your pelvic pain?
“Unexpressed emotions will never die. They are buried alive and will come forth later in uglier ways.”
S.Freud
nonsequitur
 
Posts: 114
Joined: Wed Nov 11, 2015 8:08 am

Re: Staged sacral reflex, pudendal ultrasounds

Postby Gabriel81 » Fri Feb 17, 2017 7:17 pm

Yes, IBS is related... I think I understand what you mean, searching some sort of pshycosomatic interpretation, relaxment, physio-mental-terapy, Wise-Anderson protocol, ecc... I tried in part this way but I did not feel any better. One can always argue that I am not committed enough but I simply don't believe in it.

PS: I accumulate about 200 or more psycotheray sessions along the years, altough generic ones.

I talked with the "pain therapy" doctor in my country to discuss the situation and take some advice, she is very heplful and accept the fact that other specilaist foow me too.
She haven't specific knowledge about pudendal neuralgia but general experience in pain therapy and management and suggest to try pulsed radiofrequncy (it will applicate on sacral roots) and Scrambler therapy. I will do it but only just for a try...
2004 Urethral burnings, chronic prostatitis diagnosis, unuseful drugs. Lately added chronic pelvic contracture.
2011 Pudendal Neuralgia diagnosis, nerve blocks and oral drugs.
2013 Two neuromodulation surgeries.
2016 Possover negate Pudendal Neuralgia (no pain elicited on rectal exploration), says problem is more central but MRI- neurography show nothing.
2017 De Bisshop found Oedema/hyperpressure and neurological abnormal response on intrapiriform area, most on sx.
Failed injection blocks.
Gabriel81
 
Posts: 33
Joined: Mon May 02, 2016 5:03 pm
Location: Siracusa, Italy

Re: Staged sacral reflex, pudendal ultrasounds

Postby nonsequitur » Sat Feb 18, 2017 2:04 am

gabriel,

I indeed recovered with mindbody after 12 years of pudendal pain. It took me 2 years of complete focus on the mindbody connection.
I got no help from psychologists.

I simply don't believe in it.


Then it is not the right approach for you. You cannot heal if you are even slightly ambivalent. Good luck with surgery or whatever path you choose.
“Unexpressed emotions will never die. They are buried alive and will come forth later in uglier ways.”
S.Freud
nonsequitur
 
Posts: 114
Joined: Wed Nov 11, 2015 8:08 am

Re: Staged sacral reflex, pudendal ultrasounds

Postby Gabriel81 » Sat Feb 18, 2017 12:06 pm

nonsequitur, precisely what specialist should I search for a mindbody specific therapy?
2004 Urethral burnings, chronic prostatitis diagnosis, unuseful drugs. Lately added chronic pelvic contracture.
2011 Pudendal Neuralgia diagnosis, nerve blocks and oral drugs.
2013 Two neuromodulation surgeries.
2016 Possover negate Pudendal Neuralgia (no pain elicited on rectal exploration), says problem is more central but MRI- neurography show nothing.
2017 De Bisshop found Oedema/hyperpressure and neurological abnormal response on intrapiriform area, most on sx.
Failed injection blocks.
Gabriel81
 
Posts: 33
Joined: Mon May 02, 2016 5:03 pm
Location: Siracusa, Italy

Re: Staged sacral reflex, pudendal ultrasounds

Postby nonsequitur » Sat Feb 18, 2017 4:15 pm

You can look into it if you had trauma in your past or suffer from anxiety. If your pain started during or after a stressful event, that would be a good indication. Non-bacterial prostatitis is a mindbody syndrome. You perpetually keep the pelvic floor in contraction unconsciously.

Also if prior to pelvic pain, you had other symptoms like back pain, OCD, IBS, or some allergies that could point to a somatoform pain disorder.

In my opinion, you can heal without a specialist. In many ways I think you have to make the effort yourself to heal. If you rely on someone else to "fix" you, it means that you may not be ready yet.

There are resources on tmswiki.org. Alan Gordon does skype sessions for example.
http://www.tmswiki.org/ppd/TMS_Recovery_Program
“Unexpressed emotions will never die. They are buried alive and will come forth later in uglier ways.”
S.Freud
nonsequitur
 
Posts: 114
Joined: Wed Nov 11, 2015 8:08 am

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