Staged sacral reflex, pudendal ultrasounds

PNMLT, EMG, SSEP, and other Nerve function testing.
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Staged sacral reflex, pudendal ultrasounds

Postby Gabriel81 » Sat Nov 12, 2016 7:31 pm

Hello, my entire history is on welcome center: "Pudendal nevralgia from 12 years"

I booked exams "Staged sacral reflex" and "pudendal ultrasounds" with Dr. DeBisschop (Aubagne, France).

I want ask you if someone already did this kind of exams and his experience.

Also, some practical advice: he sent me an email in which proposed 6th january 11 am and 12 am... I accept and confirm but after some days I had a doubt about this date because it is no-working day and I sent another mail to ask the cost and another confirm specifyng that it is no-working day...
He send me the costs in attachment but doesn't answer about the date confirm (also in previous mails he doesn't answer at all questions).

It is normal for french doctor to work on festivity? I have to book flight and hotel then I'm a bit worried that he did not consider it...


Thanks for your advices...
2004 Urethral burnings, chronic prostatitis diagnosis, unuseful drugs. Lately added chronic pelvic contracture.
2011 Pudendal Neuralgia diagnosis, nerve blocks and oral drugs.
2013 Two neuromodulation surgeries.
2016 Possover negate Pudendal Neuralgia (no pain elicited on rectal exploration), says problem is more central but MRI- neurography show nothing.
2017 De Bisshop found Oedema/hyperpressure and neurological abnormal response on intrapiriform area, most on sx.
Failed injection blocks.
Gabriel81
 
Posts: 43
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Location: Siracusa, Italy

Re: Staged sacral reflex, pudendal ultrasounds

Postby Violet M » Sun Nov 13, 2016 1:53 am

Gabriel, I did not have a pudendal ultrasound but I think I had the staged sacral reflex. It's a little bit painful but doesn't take very long.

I don't know about the French holiday. I would email him again with just the one question to confirm the date and that it is not a holiday. If you have to ask more than one question in an email it might help to number them...

1. Question one
2. Question two

etc., and keep them short. Doctors are very busy people.

I wish you all the best with your appointment.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Staged sacral reflex, pudendal ultrasounds

Postby chenonceau » Sun Nov 13, 2016 9:28 pm

Gabriel81 wrote:Hello, my entire history is on welcome center: "Pudendal nevralgia from 12 years"

I booked exams "Staged sacral reflex" and "pudendal ultrasounds" with Dr. DeBisschop (Aubagne, France).

I want ask you if someone already did this kind of exams and his experience.

Also, some practical advice: he sent me an email in which proposed 6th january 11 am and 12 am... I accept and confirm but after some days I had a doubt about this date because it is no-working day and I sent another mail to ask the cost and another confirm specifyng that it is no-working day...
He send me the costs in attachment but doesn't answer about the date confirm (also in previous mails he doesn't answer at all questions).

It is normal for french doctor to work on festivity? I have to book flight and hotel then I'm a bit worried that he did not consider it...


Thanks for your advices...


Hi Gabriel,

Don't worry about the January 6th 2017, it's a working day. Where did you read that it was a non working day in France ? The only thing we do on this date is eat some Galette des Rois

Image

Btw, you should have some when you're there. It's wonderful :D
Testicular pain started Jan '15 - off by may '15
Back Pain + Pain when seating Jan '16
Loss of sensation when urinating Mar '16
Urinary Retention Aug '16
Diagnosed PNE Sept'16 - 2 Nerve blocks Nov '16
Diagnosed Myofascial Syndrome March '17
chenonceau
 
Posts: 23
Joined: Sat Oct 08, 2016 1:42 pm

Re: Staged sacral reflex, pudendal ultrasounds

Postby winged_cent » Mon Nov 14, 2016 3:58 am

I did the exams with Dr. De Bisschop. They are not painful, only uncomfortable, and perfectly tolerable.
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Posts: 25
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Re: Staged sacral reflex, pudendal ultrasounds

Postby Gabriel81 » Wed Nov 16, 2016 10:35 am

Violet M wrote:Gabriel, I did not have a pudendal ultrasound but I think I had the staged sacral reflex. It's a little bit painful but doesn't take very long.

I don't know about the French holiday. I would email him again with just the one question to confirm the date and that it is not a holiday. If you have to ask more than one question in an email it might help to number them...

1. Question one
2. Question two

etc., and keep them short. Doctors are very busy people.

I wish you all the best with your appointment.

Violet


Thank you Violet, I appreciate your tireless efforts in this forum ;)

I already sent him some mails with questions but he never answer me more then one question at time...
I I would not look too insistent...

I'ts a desperate attempt to find something treatable in my nervous system...
Also in Italy I made a search about "Scrambler therapy" for pain can not be diagnosed at the peripheral level. Do you know something about this approach?
Last edited by Gabriel81 on Wed Nov 16, 2016 10:53 am, edited 1 time in total.
2004 Urethral burnings, chronic prostatitis diagnosis, unuseful drugs. Lately added chronic pelvic contracture.
2011 Pudendal Neuralgia diagnosis, nerve blocks and oral drugs.
2013 Two neuromodulation surgeries.
2016 Possover negate Pudendal Neuralgia (no pain elicited on rectal exploration), says problem is more central but MRI- neurography show nothing.
2017 De Bisshop found Oedema/hyperpressure and neurological abnormal response on intrapiriform area, most on sx.
Failed injection blocks.
Gabriel81
 
Posts: 43
Joined: Mon May 02, 2016 5:03 pm
Location: Siracusa, Italy

Re: Staged sacral reflex, pudendal ultrasounds

Postby Gabriel81 » Wed Nov 16, 2016 10:41 am

chenonceau wrote:
Hi Gabriel,

Don't worry about the January 6th 2017, it's a working day. Where did you read that it was a non working day in France ?


Here I read "festivity", but now I made a better search and see in the note "event day" and not "official rest day":
https://www.feiertagskalender.ch/index. ... 3079&hl=it

Are you french or have french parents?

Thanks
2004 Urethral burnings, chronic prostatitis diagnosis, unuseful drugs. Lately added chronic pelvic contracture.
2011 Pudendal Neuralgia diagnosis, nerve blocks and oral drugs.
2013 Two neuromodulation surgeries.
2016 Possover negate Pudendal Neuralgia (no pain elicited on rectal exploration), says problem is more central but MRI- neurography show nothing.
2017 De Bisshop found Oedema/hyperpressure and neurological abnormal response on intrapiriform area, most on sx.
Failed injection blocks.
Gabriel81
 
Posts: 43
Joined: Mon May 02, 2016 5:03 pm
Location: Siracusa, Italy

Re: Staged sacral reflex, pudendal ultrasounds

Postby Violet M » Thu Nov 17, 2016 5:31 am

Gabriel81 wrote:
Also in Italy I made a search about "Scrambler therapy" for pain can not be diagnosed at the peripheral level. Do you know something about this approach?


I don't know anyone who tried Scrambler Therapy but there is some evidence for it in the scholarly literature including an article at the following link: https://www.ncbi.nlm.nih.gov/pubmed/21763099

It sounds similar to a TENS unit only maybe more powerful. I had good results with a TENS unit after PNE surgery but before surgery it actually caused pain flare-ups so I don't know.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
Violet M
 
Posts: 5467
Joined: Mon Sep 06, 2010 6:04 am
Location: United States

Re: Staged sacral reflex, pudendal ultrasounds

Postby chenonceau » Fri Dec 09, 2016 1:50 am

Gabriel81 wrote:Are you french or have french parents?


Sorry for the late reply.
Yes, i'm french. I was living in the US but went back when I saw that all the PN specialists were in France (and also because healthcare is cheaper) :lol:

Feel free to ask if you have any question about your stay / accommodation when you're there.
Testicular pain started Jan '15 - off by may '15
Back Pain + Pain when seating Jan '16
Loss of sensation when urinating Mar '16
Urinary Retention Aug '16
Diagnosed PNE Sept'16 - 2 Nerve blocks Nov '16
Diagnosed Myofascial Syndrome March '17
chenonceau
 
Posts: 23
Joined: Sat Oct 08, 2016 1:42 pm

Re: Staged sacral reflex, pudendal ultrasounds

Postby Gabriel81 » Tue Dec 20, 2016 10:51 am

chenonceau wrote:
Gabriel81 wrote:Are you french or have french parents?


Sorry for the late reply.
Yes, i'm french. I was living in the US but went back when I saw that all the PN specialists were in France (and also because healthcare is cheaper) :lol:

Feel free to ask if you have any question about your stay / accommodation when you're there.


I choose Hotel Souleia after a brief search on google : http://www.hotel-souleia.com/italiano/index.php
It is located in 4 Cours Voltaire, 13400 Aubagne.
Dr. Bisschop give me the address: 781, route nationale 8 - 13400 Aubagne.

I will arrive a day before and leave a day after because on schedules air...

I hope this was a good choise.
2004 Urethral burnings, chronic prostatitis diagnosis, unuseful drugs. Lately added chronic pelvic contracture.
2011 Pudendal Neuralgia diagnosis, nerve blocks and oral drugs.
2013 Two neuromodulation surgeries.
2016 Possover negate Pudendal Neuralgia (no pain elicited on rectal exploration), says problem is more central but MRI- neurography show nothing.
2017 De Bisshop found Oedema/hyperpressure and neurological abnormal response on intrapiriform area, most on sx.
Failed injection blocks.
Gabriel81
 
Posts: 43
Joined: Mon May 02, 2016 5:03 pm
Location: Siracusa, Italy

Re: Staged sacral reflex, pudendal ultrasounds

Postby Gabriel81 » Sat Jan 07, 2017 10:14 pm

I have done the exams yesterdaday with Rajeshree Nundall (pelvic vassels ultrasound) and De Bisschop (staged sacral reflex) and a first nerve block (corticosteroids) at ischial spine on both sides.
First exams show an edema and compression of pudendal nerve on the left side at ischiatic spine and smaller compression (from muscle contracture only and venous reflux) on the right. Not exactly an entrapment but something that produce similar effects....
Second exams (staged sacral reflex) confirmed the main localization on the left side at this level.

Violet probably made a good point when she made the first comment my Possover consultation: viewtopic.php?f=9&t=7702
Probably Ischiatic spine location was not properly considered by previous specialists...

De Bisschop explain me that we should try a series of nerve block and evaluate the results before consifering surgery.

After first block I feel a bit better in the first minutes to return normal soon after, De Bisschop advised me of this eventuality and explained me that we should evaluate the effects in a longer time span...

I think this is something but I doubt that my complex symptomatology can be explained (and resolved) considering only this aspect highlighted by the doctors.
Remain unresolved issues (sorry for the outburst):

1) Why for the first 5-6 years I only had burning localized to the urethra during specific prostate/bladder activity and no oher sympotms like contracture, diffuse pelvic burnings that appeared much later...?
I can imagine improving symptoms like chronic pelvic contracture and diffuse pelvic burning but if remain the localized urethral burning during bladder and prostate activity it would be only a return to the conditions I had a few years ago where I was better but not enough for a satisfactory life quality (the urethral burning are sufficient to cancel my sexual-affective life).

2) There is an important pain centrlization? In this case nerve block or surgery can be insufficient anyway...
2004 Urethral burnings, chronic prostatitis diagnosis, unuseful drugs. Lately added chronic pelvic contracture.
2011 Pudendal Neuralgia diagnosis, nerve blocks and oral drugs.
2013 Two neuromodulation surgeries.
2016 Possover negate Pudendal Neuralgia (no pain elicited on rectal exploration), says problem is more central but MRI- neurography show nothing.
2017 De Bisshop found Oedema/hyperpressure and neurological abnormal response on intrapiriform area, most on sx.
Failed injection blocks.
Gabriel81
 
Posts: 43
Joined: Mon May 02, 2016 5:03 pm
Location: Siracusa, Italy

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