Need help and advice please

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Re: Need help and advice please

Postby Violet M » Fri Dec 22, 2017 5:45 am

Praying for a swift and successful recovery, Okiegirl.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Need help and advice please

Postby Okiegirl » Thu Dec 28, 2017 12:58 am

Thank you so much. My prayers are with everyone on this forum. Prior to my recent experience, I never realized what some people have to endure to find the correct diagnosis and how much suffering was involved. I have extensive experience treating patients in chronic pain and my heart always grieved for them. Now I can say I truly feel their pain and also am appalled at the way patients can be treated having now experienced it first hand. Terms like - Chronic pain syndrome are just bull! My belief from being a practitioner is there IS no such thing as chronic pelvic pain or chronic pain syndrome. That is just a garbage can kind of diagnosis that shows a lazy health care provider. The body experiences pain as a warning sign that something is terribly wrong in the body. There is always a reason for that pain and it is not “all in the head”. That type of medicine...treating patients like that is simply a disgrace and cruel. I’ve seen my own medical records and am appalled at times. I’ve just had constant pain since about June and see things on my chart implying anxiety disorder...etc.Yes, someone feels anxiety when they are in constant pain without any hope of relief. Truly, never had anxiety in my life prior to losing my ability to care for my patients, my family, my home. It angers me that the medical community is so ignorant about conditions like this and how heartbreaking people’s lives become just trying to find help and survive. Hate being treated like a “chronic pain” patient, it’s offensive and something I’m sure you all have had to endure. I pray this surgery works from the bottom of my heart. God willing, if I’m ever able to practice again I’ll fight as hard as I can to help people who are suffering. I always tried my best to provide as much comfort care as possible but now I see so many providers who have little compassion and really have no business ever touching a patient.
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Re: Need help and advice please

Postby Violet M » Fri Dec 29, 2017 5:43 pm

Hi Okiegirl,

You are so right. I was appalled when I read some of my medical records from my PNE experience too, so I can relate to what you are saying. PN can be a truly humiliating disease as well as being beyond painful. I think for someone like you who is used to being on the other side of the patient/provider relationship that it would be doubly difficult to be in the position that you are in. Just never forget that this is a medical disease and hold your head high with dignity. You will come through this as a stronger person and be in a position to help change the thinking of the medical community towards this illness. Thankfully there are physicians who do "get it" and who are very compassionate but sometimes it takes awhile to find them as you go through the PN journey. I just wish there were more of them.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Violet M
 
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