Dr Dellon

Read and discuss about the many surgical options and the surgical centres Worldwide.

Re: Dr Dellon

Postby gorenje » Thu Feb 07, 2013 11:05 pm

Dr. Aszmann gave me the email address to one of his former patients. Here is his reply. (I have removed his name):

Hello,

my problems began in the fall of 2009. It started with genital and perineal pain, it was unbearable. I think it was a result of the accident and took me inside the scar. After two months the pain lessened a bit, but it was still unbearable. I could not sit. Seating was the most painful. I felt it also when walking and standing. From pain I could not escape. Pain soon began to spread to the buttocks, back and legs. I had the same pain in the feet as a perineum, I could not stand for a long time, it was unbearable. My genitals were downloaded in spasm and very insensitive. It seemed to look pretty ugly. I often had a cramp in the legs. Genitals was very dry and started to deteriorate the quality of pubic hair. (pain was hot and biting)

Before Aszmannem treated me another doctor. He was investigating me per rectum. He said that I have there stiff and it does not hurt and there I have muscle knots. He gave me some injections to perineum. I heve also rehabilitation. I did physical therapy per rectum, and I had too stimulating electricity per rectum. They said something about trigger points.

To decompress, I was at the beginning of summer 2012. Convalescence was very slow. Is February and I'm still not okay. But I feel much better. Pains are much smaller. Genitals are slowly released and restores the sensitivity. With the erection I had problems especially after surgery. After half a year, and sexuality started to improve. Because it still is not healed, after sex it hurts. Sex causes the back spasm and numbness, especially at the beginning of treatment.

I had a compression on the left branch of pudendus. Nerve were pathologically enlarged to a width. Aszmann suspected to compress after seeing the MRI, and he was right.

Aszmann and I think that I'll be perfectly fine. It probably wants some time.

Good luck!
gorenje
 
Posts: 19
Joined: Thu Jan 03, 2013 10:26 pm

Re: Dr Dellon

Postby ezer » Thu Feb 07, 2013 11:19 pm

Thanks for sharing. Do you know what was the accident that person suffered? I mean if there is a direct trauma to the area from an accident, there can be certainly consequences.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
User avatar
ezer
 
Posts: 712
Joined: Sun Sep 19, 2010 6:53 am

Re: Dr Dellon

Postby gorenje » Thu Feb 07, 2013 11:24 pm

No, I don't know what kind of accident it was but I can email him back and ask.
gorenje
 
Posts: 19
Joined: Thu Jan 03, 2013 10:26 pm

Re: Dr Dellon

Postby mikette » Fri Feb 08, 2013 5:34 pm

Apart from dorsal nerve surgery, anybody knows if are more the patients who underwent surgery with dr aszmann and improved their condition than the ones who didn't?
mikette
 
Posts: 47
Joined: Sat Sep 25, 2010 10:06 pm

Re: Dr Dellon

Postby Griff522 » Thu Feb 14, 2013 1:07 pm

In general, surgery doesn't work for this issue. That's why there are not a whole lot of doctors doing it. My advice would be to rule out every possible cause of your pain. See a urologist, and an orthopedic dr or surgeon. Consult with a pelvic floor physical therapist and have them check you out. All kinds of problems can cause pudendal nerve pain. In my case it is two hernias and a labral tear in my hip. But none of the 9 doctors that I saw in the last 3 years ever mentioned the word hernia or labral tear. I had to research and finally find a doctor who was willing to help me find the source of my pain. And believe me, those kind of doctors are hard to come by. But keep searching because they are out there.

If you do have scar tissue, it can be addressed and relieved through PT and ART (Active Release Technique) done by a chiropractor. I did develop scar tissue as the result of my surgery with Dellon, and I could actually feel the ropey tissue that was bothering me. My chiropractor felt it as well, and focused on that area and after about 2 or 3 sessions with him last summer it was gone. Don't have surgery to remove your nerve from scar tissue because the surgery itself will just create more!
Burning vulva pain began 10/09
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
Griff522
 
Posts: 317
Joined: Sun Oct 10, 2010 7:42 pm
Location: Michigan

Re: Dr Dellon

Postby gorenje » Thu Feb 14, 2013 10:17 pm

Griff522, I'm happy to hear that PT and ART are effective treatments against scar tissue around the nerve - and that your chiropractor was able to help you. For some reason scar formation seem to be more of an issue with dorsal nerve decompression surgery than with the other surgeries - I wonder why? From what I have read about other people on this board who had dorsal nerve decompression they generally seemed to have an improvement the first few weeks post surgery before their condition worsened. Maybe the two treatments you mentioned (PT and ART) done post-op would improve the long term success of this surgery?
gorenje
 
Posts: 19
Joined: Thu Jan 03, 2013 10:26 pm

Re: Dr Dellon

Postby ezer » Thu Feb 14, 2013 10:46 pm

Gorenje,
I had plenty of PT after dorsal decompression and that did not improve the outcome of that surgery. Please consider also that they have to cut through some small muscles like the ischiocavernosus to get through to the dorsal nerve. It is delicate and it is not risk free.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
User avatar
ezer
 
Posts: 712
Joined: Sun Sep 19, 2010 6:53 am

Re: Dr Dellon

Postby gorenje » Thu Feb 14, 2013 11:16 pm

ezer, I see. I'm sorry it didn't work for you. I thought I was on to something - but I guess maybe not. Assuming there had been no scar formation causing problems post-op, would you then consider this surgery to be justified or would you basically see it as of no use - no matter what?
gorenje
 
Posts: 19
Joined: Thu Jan 03, 2013 10:26 pm

Re: Dr Dellon

Postby ezer » Thu Feb 14, 2013 11:49 pm

I am not sure scar tissue is such a big deal. I am more concerned about what they had to cut to get to the dorsal nerve. But I really question the premise of a new undiscovered entrapment at the pubic ramus to be honest.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
User avatar
ezer
 
Posts: 712
Joined: Sun Sep 19, 2010 6:53 am

Re: Dr Dellon

Postby flyer28 » Fri Feb 15, 2013 12:10 pm

it is difficult to state final judgement about the dorsal nerve decompression surgery. This surgery is somehow more safe than the classic TG approach with shorter time of recovery, especially the time immediately after operation. On the other hand, the results are mixed. What makes me scare that operation in even some cases which seemed the "classic" ones (pain, numbness, tinel sign in dorsal nerve area) did not delivered relief. ON the other hand, some others were succesful.
I am suffering with chronic pain in the area of ischiocavernosus/base of penis but still dont favour that operaion, despite dr.Aszmann found some fibrotic thickening in my right dorsal canal. Somebody stated that dr.Aszmann is colleting big survey about all of his operation. Maybe that would be interesting, not all of his patients publish here their results. Anyhow, results from dr. Aszmann seem to be much better than results of dr.Dellon.
summer 2009 - episodic pain in genital area, mainly after sex, then also after any other physical labour
early 2010- major flare-up, lasting 3 months, later almost complete resulion of pain
late 2010 - chronification of pain
february 2011 - ESCW wave. major flare-up of debilitating pain, lasting 5 months
february 2012 - diagnosed CPPS with irritation of pudendal nerve, hypogastric plexus block
june 2012 - dorsal nerve block made by prof. Aszmann, no relief
november 2012 - worsening of pain
flyer28
 
Posts: 219
Joined: Fri Mar 25, 2011 11:29 am

PreviousNext

Return to SURGERY

Who is online

Users browsing this forum: No registered users and 1 guest

cron