Symptoms and Surgery / Two questions Please

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Re: Symptoms and Surgery / Two questions Please

Postby tonygret » Wed Jun 14, 2017 2:15 am

Alan1646 wrote:Have you tried any drugs such as Valium or other Benzodiazepines? A lot of people posting here have found they help a lot.


For perhaps obvious reasons, I don't want to publicly announce the medications I have taken. But suffice t to say, I have tried many combinations of medications. Some work, some don't, some make you feel so awful its almost worse than the pain. I have settled into a regime that takes the edge off the pain enough to allow me to work full time. I spend each weekend recovering from the week. Its an awful existence. But right now I have no other options.
Middle aged male suffering excruciating pain from pudendal neuralgia for 2 years. Tried nerve blocks, caudal block, back surgery, and 8 different medications. My condition grows worse every month. Quality of life near zero. Can not sit at all. Maybe be facing permanent disability soon.
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Re: Symptoms and Surgery / Two questions Please

Postby Violet M » Thu Jun 15, 2017 5:44 am

tonygret wrote:
Violet,

My quality of life is poor. But the pain is off the charts. Where is Dr. Bautrant and how would I get in touch with him? I think I would at least do an office visit. Thank you!


He's in France, unfortunately, and my insurance didn't pay for the surgery because they said it was experimental. The docs in France are a lot cheaper than the US though -- both Prof. Robert and Bautrant. Prof. Robert is probably the cheapest -- at least he used to be.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Symptoms and Surgery / Two questions Please

Postby Nicr1983 » Fri Jun 23, 2017 7:54 pm

Hello, sorry for your problems!.

One question. I was thinking to go to Filler's. Do you recommend him?

I've read some pretty bad reviews, although I'm aware of that good results often don't do reviews.

I've heard that he usually tries to diagnose piriformis for everything...

I'm scared now. Makes you wonder if the guys in france are better ...
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Re: Symptoms and Surgery / Two questions Please

Postby stephanies » Fri Jul 21, 2017 5:40 am

Nicr,

Were you able to decide on a doctor you felt comfortable enough with to see for your PN pain or to have a 3T MRI? I am surprised the pudendal nerve EMG is available in South America, I thought only Dr. Bautrant and his current and former team, and Dr. Conway, who trained initially with Dr. Bautrant, were using it. Most of the doctors do not. It seems like the doctor who performed this test on you would have enough knowledge of pudendal neuralgia to give you some direction about where to go and what to do next. Did he or she have any suggestions? Typically I would think this might be Botox injections into the pelvic floor muscles. Is this available where you live? It seems you were only with us for a few days and it has been a while since your last post. Please keep us updated when you can. I hope you are finding relief.

Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13.
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