PGAD - persistent genital arousal disorder

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN

Re: PGAD - persistent genital arousal disorder

Postby sadie » Wed Oct 11, 2017 6:37 am

hi Amanda

I am not sure if you have access to compounded lidocanes where you are, but I get a 10% compounded lidocane from a pharmacy hours away from my home, and they ship it to me ...they even ship it in ice packs in the summer . if you want more info on that I am sure my pharmacist will be happy to email yours in which ever country you are in ...just send me a PM.

It is a cream that i keep in the refrigerator and it is amazing on burning and itching on the vagina area , but only works a little on PGAD..... but any PGAD help is great in my book. I found the 2% and 5% lidocanes do nothing for me . ...they were not strong enough.

I use Salonpas HOT patches (that i believe were meant for back and neck pain etc) for the PGAD that is anywhere except the clitoris...for instance, i can have arousal in the labia minora so I wear a sm patch over the labia minoria (i make little patches cut from the lg patches that come in the box.) . They have menthol and capsaicin on them and they stick on great and the cool burn balances the arousal and works great . I use the larger patches when the arousal goes to the crease of my leg in the genital femoral area etc and could not live without this product.

I hope this helps as my heart goes out to you , Sadie
2007-2010 anitriptyline for PN, 2010 it caused severe dystonia
2010 PNB w steroids caused severe PGAD
11-2010 St Josephs NH. , ketamine drip, meds etc to stop nerve from firing, nothing worked
11-2010 - 3-2011 Elliott Hosp. Pain Manag. Center , 16 PNB w/ lidocane did not work
3-2011 bilateral TG surg., w/ Dr. Conway
12-2011 3TMRI, Dr. Potter, rt side nerve re-entrapped w/ scar tissue
3-2013 rt side re-do surgery w/ Dr. Hibner for PGAD
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Re: PGAD - persistent genital arousal disorder

Postby jules75 » Fri Oct 13, 2017 2:35 am

Has anyone tried any medications that were successful in treating their pgad? I'm currently on 500mg of gabapentin (once daily) and only notice relief for the first few days after upping the dosage. After that my pain goes back to normal :( I'm interested in non-opioid options like amitriptyline, lyrica, lexapro... for those who use lidocaine patches, does it help with the sensitivity near the bladder and urethra? Thanks in advance!
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Re: PGAD - persistent genital arousal disorder

Postby Violet M » Sat Oct 14, 2017 4:25 am

Yes, lexapro took about 75% of the PGAD away for me. But since some women say that going off SSRI's caused their PGAD, when I eventually went off lexapro I went off very slowly over the course of a year.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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