Potter MRI shows varices

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN

Potter MRI shows varices

Postby Hopeitworks » Fri Dec 01, 2017 9:10 pm

I received my MRI report from Dr. Potter. The findings state small varices course with the dorsal nerves ( I can not see the veins) to the clitoris. There is increased signal intensity in the bulbospongiosus muscles bilaterally. A small portion of the sciatic nerves pierce the piriformis muscles bilaterally. Could these findings be the cause of PGAD and PN? If so what would you suggest my next steps be?
Hope
Hopeitworks
 
Posts: 87
Joined: Tue Sep 05, 2017 2:12 am

Re: Potter MRI shows varices

Postby Violet M » Sat Dec 02, 2017 7:02 am

I don't know, I can't say for sure. There are people who have had varices (that seemed significant) embolized and it didn't make a difference. My previous gyn said she sees women with large pelvic varices and no symptoms at all. So I don't know if anyone can say with any certainty whether the varices are what is causing your PGAD. There is one case report that I am aware of. https://www.ncbi.nlm.nih.gov/pubmed/18004995

If I remember correctly, don't you have quite a few other symptoms besides just in areas innervated by the dorsal nerve? I wonder if that suggests a different etiology than just these small varices next to one branch of the nerve.

Before having anything done that is invasive and irreversible, it seems like it might make sense to at least have an evaluation by a good PT to get their input also.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
Violet M
 
Posts: 5464
Joined: Mon Sep 06, 2010 6:04 am
Location: United States

Re: Potter MRI shows varices

Postby Violet M » Sun Dec 03, 2017 5:52 am

Here's an article on vein embolization for vulvar varices. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4164194/
I haven't been able to find any on embolization of clitoral veins for PGAD.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
Violet M
 
Posts: 5464
Joined: Mon Sep 06, 2010 6:04 am
Location: United States

Re: Potter MRI shows varices

Postby Violet M » Sun Dec 03, 2017 5:54 am

Here's an article on vein embolization for vulvar varices. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4164194/
I haven't been able to find any on embolization of clitoral veins for PGAD.

Did you have the vestibulectomy before you had PGAD?

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
Violet M
 
Posts: 5464
Joined: Mon Sep 06, 2010 6:04 am
Location: United States

Re: Potter MRI shows varices

Postby Hopeitworks » Sun Dec 03, 2017 6:09 am

Thank you! PGAD was before vestibuletcomy. I'm losing hope because if it's not the vein it leaves me with nothing to go off of. I won't know what steps to take next. I see my doctor on Monday and I am hoping he at least explores the vein as a possibility.
Hopeitworks
 
Posts: 87
Joined: Tue Sep 05, 2017 2:12 am

Re: Potter MRI shows varices

Postby Hopeitworks » Sun Dec 03, 2017 6:13 am

I've also read vulvar veins are rare if your not pregnant. Also they usually go go hand and hand with pelvic congestion syndrome. Which I don't have, per my MRI. I am thankful that nothing serious showed, but at the same time I was looking for the "it" that caused PGAD.
Hopeitworks
 
Posts: 87
Joined: Tue Sep 05, 2017 2:12 am

Re: Potter MRI shows varices

Postby Violet M » Mon Dec 04, 2017 6:21 am

Well, I think it's way too soon to lose hope. You have a lot of different options so I think there is good reason for hope that you will get better.

Hugs,

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
Violet M
 
Posts: 5464
Joined: Mon Sep 06, 2010 6:04 am
Location: United States


Return to CAUSES & EFFECTS OF PUDENDAL NEURALGIA

Who is online

Users browsing this forum: No registered users and 1 guest