Very worried after nerve block

Nerve blocks using many techniques, and medications - options discussed in detail

Re: Very worried after nerve block

Postby nonsequitur » Wed Feb 22, 2017 7:17 am

steviee,

I am impressed. You are displaying remarkable self-awareness. You should really not stress over the ganglion impar block. You'll recover. I had 6 nerve blocks, botox, and 2 failed PNE surgeries. I recovered eventually.

Just a bit of warning regarding the psychotropic medications you are prescribed. I truly started to recover using the mindbody method when I finally discontinued similar drugs (I was on Ambien and Oxycodone). From what I read, benzos (or closely related Ambien) prevent the re consolidation of emotional memories during the REM sleep phase. Opioids equally numb your emotions. Somatoform pain syndromes and unfelt emotions are closely interconnected and processed by the same area of the brain (the amygdala).

I realize that Sarno allowed his patients to take medication for pain relief. It has been my experience however that my recovery accelerated dramatically when I stopped taking those medications. Strangely enough, my pudendal pain comes back for 2-3 days if I take an Ambien sleeping pill.
“Unexpressed emotions will never die. They are buried alive and will come forth later in uglier ways.”
S.Freud
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Re: Very worried after nerve block

Postby Violet M » Fri Feb 24, 2017 5:44 am

Stephen, are you able to see a PT who can do an exam and find out if there are any structural or muscular reasons as to why your pain might not be settling down? I think at this point you may want to do non-invasive therapies and wait for the pain to calm down. One other thing that you might want to do is to have a lumbosacral and lumbosacral plexus MRI done to make sure there is nothing obvious that would have caused your pain, especially if you haven't had an MRI at all yet.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Very worried after nerve block

Postby stevee620 » Sun Feb 26, 2017 2:52 am

Hi Violet,
Thanks for the suggestions. I've thought about PT myself but they're hard to find around here, i've searched, and i'm a bit worried about making things worse, because i know through self examination that there are very sensitive spots in my rectal muscles. I must admit, that i HAVE noticed ever so slight reduction in symptoms in the last week or so. (I'm touching wood as i type this).
The pain never completely went away before the block, but it varied depending on things like bowel movements or any sexual activity.. But, thanks to a very good psychosexual counselor, i could live a reasonably fulfilling life, knowing my restrictions. I think its probably going to be just a matter of letting it settle down, (however painfully slow it is). If it settles down to how it was pre nerve block, that will do for me. As i said, i can live with that. Maybe if it doesn't settle back down, then i'll mention the MRI to the pain doctor in April at my follow up appointment.
Stephen.
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Re: Very worried after nerve block

Postby Violet M » Mon Feb 27, 2017 5:43 am

OK, that's great news to hear you sounding a bit more positive. ;)

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Very worried after nerve block

Postby stevee620 » Tue Feb 28, 2017 1:21 am

Thanks Violet.
I think i may have hit on something that may be responsible for this delay in recovery. Thanks to info on this site and advice from posters, (got some good advice from "keepmoving" yesterday i think it was but he/she seems to have removed his/her post.)
Anyway, my theory is that i've got into the "Painkiller/constipation" vicious cycle. When it flared up badly after the block, i started taking more painkillers, co codamol 30s, which were making me more constipated, and thus everytime i went to the toilet, i was aggravating the nerve even more, and consequently taking more painkillers etc etc....
I was taking fybogel and a stool softener, but these weren't doing enough. So i put wholemeal bread into the mix and that seems to work better. So the theory, softer stools=less irritation=less painkillers=softer stools. Sounds too simple but i hope it works. And maybe helps someone else who is in the same situation and hasn't realized it, like i hadn't.
Stephen.
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Re: Very worried after nerve block

Postby Violet M » Wed Mar 01, 2017 5:15 am

Hope this new approach works for you. There are more ideas for constipation at the following link:

http://www.pudendalhope.info/node/32

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Very worried after nerve block

Postby mariobryant » Sat Mar 18, 2017 3:50 pm

The facet joint nerve block is done to see if it is in fact the facet joint that is causing your pain. They are similar to other nerve blocks, just specific to the location .
As far as the myelogram goes, and the headache....as long as you keep your head no higher than the 20-30 degrees that they recommend ( one pillow high) for the 24 hours afterward, except for meals and bathroom trips, you should be fine. Remember to drink caffeinated beverages. They really do help for some reason to ease the chances of a post myelogram headache.
The blood work is done to ensure that there is no infection brewing in your body prior to the myelogram. It is for your safety. The last thing you want is to be brewing an infection and having a myelogram.
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Re: Very worried after nerve block

Postby volans » Wed Apr 19, 2017 7:04 am

Violet M wrote:Other options would be compounded creams that have ketamine, gabapentin, or baclofen. You could also try valium suppositories or some people even insert oral valium pills because they are much cheaper.

Violet


I'm taking regular oral gabapentin and it's not doing much to relieve the pain (and i'm on 1500mg/day). Would a compound cream be more effective?
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Re: Very worried after nerve block

Postby Violet M » Thu Apr 20, 2017 5:09 am

You don't really know what medication will work for you until you try it but, regarding gabapentin, my understanding is that to achieve pain relief you need to be taking at least 1800 mg a day. Sometimes a combination of meds is more effective than one by itself.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Very worried after nerve block

Postby mary jane » Sat Jun 17, 2017 8:33 pm

volans wrote:
Violet M wrote:Other options would be compounded creams that have ketamine, gabapentin, or baclofen. You could also try valium suppositories or some people even insert oral valium pills because they are much cheaper.

Violet


I'm taking regular oral gabapentin and it's not doing much to relieve the pain (and i'm on 1500mg/day). Would a compound cream be more effective?



Gabapentin cream 6% has been used by some with vulvodynia and a study showed pretty good results with this cream
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
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